Supporting participation in healthcare: patient and caregiver perspectives of an occupational therapy patient navigator (OTPN) for people with ASD/IDD

• Main Author: Menendez, Gabrielle
• Other Authors: Cohn, Ellen S.
• Language: en_US
• Published: 2020
• Subjects: Occupational therapy; Autism spectrum disorder; Developmental disabilities; Healthcare access
• Online Access: https://hdl.handle.net/2144/41436

INTRODUCTION: The OTPN at Massachusetts General Hospital works to reduce barriers to care and implement tailored accommodations to improve patients with ASD/IDD access to and participation in healthcare. A quality improvement project was conducted to understand the OTPN interventions perceived as valuable by the recipients of care. THEORETICAL PERSPECTIVE AND EVIDENCE: Patients with ASD/IDD experience unmet healthcare needs and low patient satisfaction when accessing healthcare. Wagner’s Chronic Care Model was used as a framework to understand the factors that contribute to this problem. Current literature provides evidence-based strategies to improve the quality of care for patients with ASD when accessing healthcare services, but lacks descriptive evidence from the patient and caregiver perspective. DESCRIPTION OF PROJECT: Semi-structured interviews were conducted with three clients of the OTPN (one former patient with ASD and two parents of former patients). Using the phenomenological method, data was collected and analyzed to develop themes identified among participants. A follow-up interview with the OTPN obtained the OT perspective that informed the interventions valued by project participants. RESULTS: Participants identified barriers to care prior to collaborating with the OTPN, as well as valued OTPN interventions that involved patient-centered anticipatory planning, advocacy, and coordination of care. The OTPN used her OT perspective to understand the intersection of the person, environment and occupation to inform interventions that improved the patient experience. CONCLUSION: Customized interventions provided by the OTPN were highly valued by previous clients and were perceived to improve their healthcare experience by addressing unique patient needs and preferences.