The transition to adulthood and adult services for young people with intellectual disabilities : multiple perspectives

This portfolio thesis consists of three parts: Part one - Systematic Literature Review The systematic literature explores and conceptualises the existing empirical literature relating to parent’s experiences of the transition to adulthood for their child with intellectual disabilities. A systematic...

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Bibliographic Details
Main Author: Doski, Ava
Other Authors: Hutchinson, Nick
Published: University of Hull 2018
Subjects:
Online Access:https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.762100
Description
Summary:This portfolio thesis consists of three parts: Part one - Systematic Literature Review The systematic literature explores and conceptualises the existing empirical literature relating to parent’s experiences of the transition to adulthood for their child with intellectual disabilities. A systematic search identified 16 studies relevant for this review. The transition process to adulthood is often accompanied by a number of processes, includes parental involvement and has psychological and financial impact on parents. The data was synthesised using a narrative synthesis approach, including the methodological critique of the studies. Conclusions from the evidence base are drawn, and implications for future research are considered. Part two - Empirical Paper The empirical paper explored the experiences of residential staff and healthcare professionals that have worked with young adults with intellectual disabilities who have been in the care of the Local Authority and transitioned to adult services. A qualitative approach was adopted, primarily a thematic analysis. Three superordinate and nine subordinate themes were identified. Participants’ experiences of the transition to adult services included what adulthood meant for young adults with intellectual disabilities once they departed from the care system, how transitions to adult services begin, and an absence of person-centred care occurs in adult services. The findings are discussed in the context of relevant theoretical and empirical literature, and the implications for services and future research are discussed. Part three - Appendices The appendices section provides a set of appendices relating to both the systematic literature review and the empirical paper. Also included in the appendices is an epistemological statement and a reflective statement, which consider the researcher’s experiences of conducting the empirical paper research.