Cystic fibrosis and family relationships : adolescent, parent and health-professional perspectives

• Main Author: Whelan, Frieda
• Published: University of Glasgow 2018
• Subjects: BF Psychology
• Online Access: https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.761917

Objective: The aim of the present study was to explore the experiences of family relationships during adolescence from the perspective of adolescents with cystic fibrosis, family caregivers and health-professionals. Methods: In-depth semi-structured interviews were conducted with three adolescents with cystic fibrosis (aged 15-18), two mothers and two health-professionals. Results: Thematic analysis produced three themes, each with two sub-themes. Theme 1: family coping (using avoidant coping to manage the challenges of CF and the availability of support), theme 2: roles and boundaries (how these are adapted in families and the transition of these during adolescence), and theme 3: managing adolescence versus managing adolescents (adolescents balancing CF life with teen life and families balancing family and adolescent developmental tasks). Conclusions: Although the sample was small, results suggest the importance that each individual family’s psychological needs are understood and appropriate support offered if required. Support to initiate difficult conversations and interventions aimed at the whole family may help to manage the psychological distress that can occur during stressful times such as adolescence.