Patient representation and the research agenda in neurodegenerative disease

Patient organisations are often characterised in sociological literature as patient representatives, speaking for people affected by an illness in medical, political and scientific spheres. Using Motor Neurone Disease and Parkinson’s organisations as case studies, I investigate the challenges faced...

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Bibliographic Details
Main Author: Grinbergs-Saull, Anna
Published: University of Brighton 2015
Subjects:
610
Online Access:https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.665813