Patient representation and the research agenda in neurodegenerative disease
Patient organisations are often characterised in sociological literature as patient representatives, speaking for people affected by an illness in medical, political and scientific spheres. Using Motor Neurone Disease and Parkinson’s organisations as case studies, I investigate the challenges faced...
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University of Brighton
2015
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Online Access: | https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.665813 |