The role of experiential knowledge in the reproductive decision making of families genetically at risk : the case of spinal muscular atrophy
This study reports on the analysis of 59 in-depth interviews conducted with people diagnosed with, or from families affected by, Spinal Muscular Atrophy (SMA). It focuses on attitudes towards, and actual uses of, prenatal testing and selective termination for SMA in reproductive decision making for...
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University of Warwick
2010
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| Online Access: | http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.544516 |