Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by progressive muscle weakness and ultimately cardiac and respiratory failure. Immediate family members are often primary caregivers of individuals wit...

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Bibliographic Details
Main Authors: Frishman, Natalia, Conway, Kristin Caspers, Andrews, Jennifer, Oleson, Jacob, Mathews, Katherine, Ciafaloni, Emma, Oleszek, Joyce, Lamb, Molly, Matthews, Dennis, Paramsothy, Pangaja, McKirgan, Lowell, Romitti, Paul
Other Authors: Univ Arizona, Dept Pediat
Language:en
Published: BIOMED CENTRAL LTD 2017
Subjects:
Becker muscular dystrophy
Caregivers
Duchenne muscular dystrophy
Dystrophinopathy
Muscular dystrophies
Quality of life
Online Access:http://hdl.handle.net/10150/623121
http://arizona.openrepository.com/arizona/handle/10150/623121

Internet

http://hdl.handle.net/10150/623121
http://arizona.openrepository.com/arizona/handle/10150/623121

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