Living with Chordoma Online: A Thematic Analysis of User's Experiences in an Online Cancer Support Group

The internet has revolutionized the way people are able to seek information and express themselves. Many fields have been dramatically impacted by its occurrence and the health field is no exception. It is becoming increasingly popular to participate in online discussion forums centered on healt...

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Bibliographic Details
Main Author: Xenakis, Gina Marie
Other Authors: Marketing
Format: Others
Published: Virginia Tech 2014
Subjects:
Online Access:http://hdl.handle.net/10919/32711
http://scholar.lib.vt.edu/theses/available/etd-05132009-155110/
Description
Summary:The internet has revolutionized the way people are able to seek information and express themselves. Many fields have been dramatically impacted by its occurrence and the health field is no exception. It is becoming increasingly popular to participate in online discussion forums centered on health-related topics. The goal of this research is to describe participantsâ experience of using an on-line forum focused on Chordoma, a rare form of cancer. Analysis of free-response questionnaires filled out by members of the forum, revealed four key themes: (a) the forum is a source of invaluable information, (b) the forum is a source for emotional support and hope, (c) members share a unique bond that often results in friendship, and (d) membersâ involvement changes over time. Benefits obtained by the users and implications for medical professionals are discussed. === Master of Science