| Summary: | ABSTRACT Background: Endometriosis is a chronic disease where the tissue, that the uterus contains,also can be found outside the uterus. The objective of the study was to investigate young women’s experience of endometriosisand how they experience the care. Method: Fourteen young adults were asked to participate and eight of them did participate.They were all in the range of age 14-20 and they all had had contact with a unit forendometriosis in Sweden. Semai-structured interview was chosen as the data collectionmethod. An interview guide was used during the interviews. For the analysis aphenomenological method with focus upon experiences was used. Results: The result showed that the young adults’ experiences in the daily living containedpain, alienation, tiredness and side effects. Self care and family support was connected to theyoung adults’ daily living. The young adults’ experiences of the treatment from healthprofessionals partly contained ignorance and blank, but in the specialized care the knowledgeand the understanding of endometriosis were better. There was a struggle to be a young adultin the health care. They felt fear and worries, helplessness, anger, dejection and a security toknow that there is help to get. Conclusion: The experiences of not being heard or seen in the health care were for mostwomen a problem. The knowledge of endometriosis was low among many professionals.The participants experienced that the knowledge was better when they came in touch withspecialized care, but the way to get there was tough and took a long time. Keywords: endometriosis, young adult, experiences, pain
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