Upplevelser av att vara vårdande närstående till en person med Alzheimers sjukdom : en studie av självbiografier

• Main Authors: Robinson, Anna, Schrevelius, Josephine, Skälegård, Terese
• Format: Others
• Language: Swedish
• Published: Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur 2011
• Subjects: Alzheimer´s disease; autobiography; caregivers; family nursing; next of kin; Nursing; Omvårdnad
• Online Access: http://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-3204

Background: Alzheimer´s disease is a so-called degenerative dementia in which brain cells gradually degenerate and die. The disease causes memory disorders and the trait of character disappears. Alzheimer´s disease also affects the related parties that may take a great responsibility. Related caregivers are entitled to support from healthcare. Aim: The aim of the study was to describe the experiences of being related when caring for a person suffering from Alzheimer´s disease. Method: The study was based on narratives, which in this case means analysis of autobiographies. Six books were analyzed in accordance with Dahlborg-Lyckhage. Results: Three themes and nine sub-themes were developed. The related experienced several emotions. The feelings are reflected in three themes; anxiety, new life and powerlessness. Fear and anxiety were feelings that were there constantly. The new life led to a role change and aroused feelings of sorrow and loneliness. There were times when the related felt powerless. Anger, irritation, guilt and shame were experiences which they could not control. Conclusion: Alzheimer´s disease affects the entire family. The burden of the related caregiver can lead to illness. It is important that nurses take their responsibility by providing information and support the related so that he or she can better deal with the situation.