Family, loss, and place : everyday experiences of hereditary cancer in a First Nation community

This thesis examines how people from a First Nation community, where a unique hereditary BRCA2 mutation has been identified, perceive their risks for genetic disease. The study is based on participant observation and interviews with people from the reserve (mainly women) who have received genetic co...

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Bibliographic Details
Main Author: Damiano Paterson, Natasha Lucia
Language:English
Published: University of British Columbia 2010
Online Access:http://hdl.handle.net/2429/29636
Description
Summary:This thesis examines how people from a First Nation community, where a unique hereditary BRCA2 mutation has been identified, perceive their risks for genetic disease. The study is based on participant observation and interviews with people from the reserve (mainly women) who have received genetic counseling and testing, as well as those who have not. Additionally, people on the reserve are worried about the affect of environmental toxins on cancer in their community, a concern that predates the identification of the BRCA2 mutation. Using a grounded theory approach, this thesis argues that cancer in this community is experienced in relation to changing roles in the family, the loss of family members due to cancer and other causes, and sense of place and its affect on views of cancer. The result is a sense that the community as a whole may be just as “at risk” as the individuals and families that have the identified mutation. === Arts, Faculty of === Anthropology, Department of === Graduate