A Self-Narrative Research on Interpersonal Interactive Experience of A Girl with Mucopolysaccharidosis VI

• Main Authors: Weng, Yu-Han, 翁榆涵
• Other Authors: 李姿瑩
• Format: Others
• Language: zh-TW
• Published: 2018
• Online Access: http://ndltd.ncl.edu.tw/handle/65v46j

碩士 === 臺北市立大學 === 特殊教育學系 === 106 === This was a long story about how a girl with MPS VI build relationships with people. There were not much researcher use MPS as a research topic. In this study, I used the self-narrative method as the research method. I was the researcher and the subject as well. The data of the study was collected from the interviews, diaries, note paper and memories, and analyzed in a qualitative way. The factors affected the interpersonal interaction in my life were not only the result of the disease, but also including my special family situation, interpersonal experience and environmental factors. I redefined the means of the experiences I used to interact with people: people were always as supporting role in other’s life, but they were surely as the leading role in their own life. There were positive, negative, unsuccessful and successful interactions with people in the past. However, these experiences made me a unique life.