The Lived Experiences and Long-term Care Needs of Main CaregiversCaring for Children with Adrenoleukodystrophy
碩士 === 國立臺北護理健康大學 === 護理研究所 === 104 === Adrenoleukodystrophy (ALD) is a rare recessive hereditary metabolic disease that impacts the neurotransmission of the central nervous system as a result of damage to the myelin sheath. Children with ALD experience gradual deterioration of physical functions, s...
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| Format: | Others |
| Language: | zh-TW |
| Published: |
2016
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| Online Access: | http://ndltd.ncl.edu.tw/handle/47292993761299267911 |