A self-narrative approach to ALS patients’ family experience

• Main Authors: Huang,Shao Ying, 黃詔瑩
• Other Authors: Tseng,Min Chieh
• Format: Others
• Language: zh-TW
• Published: 2015
• Online Access: http://ndltd.ncl.edu.tw/handle/60003102398467959907

碩士 === 國立臺北大學 === 社會工作學系 === 103 === This research uses a contextual descriptive view in describing how a daughter deals with her father’s diagnosis and their life with ALS. Through the description of her father’s illness, she reflects on how she has dealt with coming to terms with her father’s ALS; such as in the effect on their daily interactions, the burdens in dealing with care of ALS patients, and how she has personally coped through the process. The results of the research are as follows: the effects of the father’s ALS on the daughter’s life, how the daughter came to understand the difficulties of being a parent and raising children, the different societal roles and expectations of fathers and daughters, and finally, the author’s four part method of expressing thankfulness, love, regrets, and saying goodbye to her father. This research attempts to establish a deeper understanding in ALS caretakers and medical personnel of how to assist patients and their grieving families in sorting through the vast amount of information and the different treatment options available, in hopes that future internet or media resources create a platform for support and connections for families afflicted with ALS. The author also discovered that if the families are open to different types of support and bravely set out to find them, they will then find the strength and acceptance in dealing with the challenges of ALS.