| Summary: | 碩士 === 國防醫學院 === 護理研究所 === 102 === Background: The rare and fatal disease, ruptured cerebral aneurysm, of hemorrhagic stroke, was seen as one of the rare diseases in acute and critical illness in our country. In the clinical situation, it was found that the patient’s family cannot understand the diagnosis from the meaning of pure text, which in turn leads to more medical care labor and time cost spent to repeat the explanation, to provide the disease information before and after the surgery and to explain the cause for the occurrence of the complication to the patient’s family later on. Therefore, it is necessary to deeply investigate the way to provide effective information to the family.
Purpose: To investigate the disease related cognitive needs and related factors in cerebral aneurysm patients’ families during intensive care units.
Methods: This study was a prospective cohort study based on purposive sampling method, and cases were taken at the intensive care units of neuro-critical care department at certain medical center in Taipei City. A total of 61 person-times patients’ families were recruited. The questionnaires including the attributes of the families and the record of disease related cognitive needs were used to collect data from families of cerebral aneurysm patients during patient-visiting period. Data analysis methods included descriptive statistics, One Way ANOVA (analysis of variance), Pearson product-moment correlation and multiple regression analysis. P<0.05 was used as the statistically significant level.
Results:1)In terms of attributes, genders, educational background and whether there were other family members or friends having experiences reside in the intensive care units showed significant difference to the total inquiry time for disease related cognitive needs; 2)The families of cerebral aneurysm patients in the intensive care unit showed different needs of 1~14 total question items in the disease related cognitive needs; more than half of the patients’ families were not familiar with six question items of the formation and checking of cerebral aneurysm；moreover, in the inquiry of “others”, six person-times showed concerns on how much time it took for the function of the limbs and body to recover. With regard to the total inquiry time aspect, each person-time, on the average, consumed about 18.9 minutes in getting information to satisfy disease cognitive needs; 3)The age of the families showed no correlation to total number of inquiry question item and total inquiry time in disease related cognitive needs; 4)Whether the family member or friend of the families had experience residing in the intensive care unit during the intensive care units period was proven to be an important factor to the total number of inquiry question item in family’s disease related cognitive needs.
Conclusion: The result of this study showed the real and current situation of the content of disease related cognitive needs for the families of cerebral aneurysm patients. The findings not only could be used to shorten the cognitive difference between healthcare providers and patients’ families, but also could help the families to make correct therapeutic decision. In advance, it could also be used as good reference for the development of education content and research instrument related to cerebral aneurysm disease.
Key Words: Intensive Care Units、Cerebral Aneurysm、The Disease Related Cognitive Needs、Related Factors.
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