| Summary: | 碩士 === 國立臺灣大學 === 護理學研究所 === 97 === Purpose and method：The purpose of this study was to understand the quality of life and related factors of the primary caregivers of preterm infant. This study was designed as longitudinal study, the data were collected by purposive sampling. During April.25, 2008 to April 1. 2009, the study group was the caregivers of preterm infant. The data collection were conducted in the form of questionnaires , collected before discharge, 7~10 days after being discharged and 28~30 days after being discharged. The questionnaire enrolled the basic information on preterm. We enrolled 44 people and 32 of them completed the 3 parts of the questionnaire . the complete rate of effective questionnaire was 73%. These data were analyzed by SPSS13.0 for Windows .
Result ：
1. The majority was female infant, average birth weight was 1277g, average gestation age was 29 weeks. 56% of them got complication, the average duration of hospitalization was 64.4 days. The gestation age , complication, monitor usage and length of hospitalization had correlation with the life quality of the primary caregiver.
2. 97% of the primary caregivers were female . The average age was 33 year-old. 62 % of the caregivers kept working before the preterm infant was discharged. 53% of the caregiver graduated from the Junior College or Bacholor. 53% of them had 2 children and 41% of the family had monthly income between NT 60,001~90,000 . From the analysis of the data, we found that the more children they had in the family , the worse physical health the caregiver get .
3. In analysis the life quality , the social relationships domain got the highest score and the psychological domain got the lowest . The physical health, social relationships and environment domains reached the significant deference in deferent time point and the physical health domains got the worst performance at the post-discharge day 28~30.
4. The requirement of social support and the environment domain showed a significantly negative correlation. But the level of social support had direct proportion to the four domains of life quality which means the more social support they had, the better life quality of the primary caregiver.
5. The psychological burden got the highest score of the caregiver burden while the financial burden got the lowest . The major deference of caregiver burden was at the post-discharge day 7~10. The caregiver burden had showed a negative correlation to the quality of life and positive to the requirement of social support. These means that the biggest the care loading and the poor social support were , the worse the quality of life.
6. The predictive factors of the quality of life were: birth weight, gestation number, the number of assistant , the degree of information requirement, the degree of emotional support, the score for social support , financial burden and caregiver burden.
Conclusion: We suggested the medical staff to evaluate the social support , caregiver burden before the preterm infant was discharged in addition to offer the basic knowledge of baby care. We also help the primary caregivers to return to their original life and improve the quality of life.
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