Healthcare distress, needs and expectations for genetic health team: Perceptions of family caregivers in caring children with Russell-Silver syndrome and idiopathic short stature
碩士 === 國立陽明大學 === 臨床暨社區護理研究所 === 96 === Background. Taiwan’s children with Russell-Silver syndrome (RSS) and idiopathic short stature (CISS) as well as their family-caregivers (FCs) are often not complaint to health professionals’ suggestions for systematical medical follow-up. As such, RSS and CISS...
Main Authors: | Hsin-Ju Weng, 翁杏如 |
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Other Authors: | Fu-Jin Shih |
Format: | Others |
Language: | zh-TW |
Published: |
2008
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Online Access: | http://ndltd.ncl.edu.tw/handle/15185539698207993451 |
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