| Summary: | 碩士 === 國立臺灣大學 === 護理學研究所 === 94 === The purposes of this study were to test on the cross-cultural validation of the self-administrated tool, which included the multidimensional quality of life, then to explore the relationship among the demographic variables, the children’s disease severity, and the quality of life for children and their family.
Two stages of research were implemented: The first step was to complete with the cross-cultural translations of “ The Children’s Dermatology Life Quality Index〔CDLQI〕” and “ Dermatitis Family Impact Questionnaire〔DFI〕”. Moreover, cross-sectional study was conducted. A purposive sampling method was adopt to enroll 83 children aged 5 to 16, diagnosed as atopic dermatitis (AD) by dermatologist, and their family. Psychometric testing was conducted to verify the Taiwan versions of the CDLQI and DFI and semi-structured interviews were used to be the complementary supplement. The research findings were presented as follows:
The CDLQI Taiwan versions underwent translation and back- translation process, have been approved by the author, Dr. A. Y. Finlay, and placed on the exclusive website, http://www.dermatology.org.uk/index.asp. In the Taiwan version, correlation between items and the original subgroups ranged from 0.69 to 0.85 ( p＜0.01 ) and from 0.22＊ to 0.52＊＊( p＜0.05＊、p＜0.01＊＊) among all the subgroups. A principal-axis factoring analysis rotated by direct oblimin was used to extract the three underlining structures of the items: effect on school life and leisure, the impact on relationship and emotion, and the problems of the symptoms and treatment. The three factors accounted for 46.68% of total variance and the range of internal consistency Cronbach’s α from 0.62 to 0.83. Correlation between items and factors ranged from 0.63 to 0.87. Good properties of internal consistency, content validity, and construct validity of the CDLQI Taiwan version were reported in this study.
The DFI Taiwan version has also been extracted by exploratory factors analysis to be the two-factor structure: effect on family’s physiology and emotion, and arrangements for family daily life. Two factors were explained 50.93% of total variance. Psychometric properties of DFI Taiwan version in this study showed good reliability because standardized Cronbach’s α was 0.87 and the correlation between items and factors ranged from 0.67 to 0.82.
Findings of inferential statistics showed that, the AD children, who were junior or senior high school students, each duration continued for one month, or annual arises over 13 times, would evaluate higher scores in the CDLQI questionnaire, which reprented higher impacts on the quality of life for children with AD. Furthermore, significant correlations among the two scales, SCORAD index, objective criteria, and subjective criteria showed that AD children’s disease severity did affect themselves and parents’ quality of life. The three major items of AD children affected by the disease were symptoms and feelings, sleep, school and family life; whereas pruritus was most frequently reported by AD children. The major affected items for family with AD children were psychological pressures, tiredness, sleep, and housework; but the long-term sleep deprivation was the original reason of most impact for family.
In conclusion, the development and testing outcome of CDLQI and DFI Taiwan version could contribute to explore the disease’s effects on quality of life for AD children and their family. The present data could be used as basis of future domestic data gathering, cross-cultural comparison, and support the clinical specialists to supply the family-centered care and suitable education for AD family.
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