The wounded storyteller: the adapting and transforming processes of coping resources of the hemodialysis sufferers

• Main Authors: Chen, Mei-Kuei, 陳美貴
• Other Authors: Lin, Yaw-Sheng
• Format: Others
• Language: zh-TW
• Published: 2003
• Online Access: http://ndltd.ncl.edu.tw/handle/46h7um

碩士 === 高雄醫學大學 === 行為科學研究所 === 91 === Diagnoses of end stage of renal disease (ESRD) and experience of major sufferings can shatter one’s life beliefs. To accomplish the adaptive task and re-enact the performance function in daily life make the quite serious challenge for those sufferers. The purpose of this study is to find the adapting and transforming processes of the coping resources of the hemodialysis sufferers in light of the bio-psycho-social health model. In this qualitative research, ten patients (in the ratio of 4 to 1 between women and men, with mean age 45.1 years and hemodialysis course 6 years, were interviewed twice during the 6 months interval from the hospital-based hemodialysis centers in the southern Taiwan through the cross-sectional design. As the results of this research showed, the decisive structures of the adapting and transforming processes include: (1) impact of no more lived body, (2) shock of alien self and stigma, in the early phase, and (3) flexibility of bodily resource, (4) transformation of renewal self, (5) re-adaptation of the resilient life in the middle-later phase. When the mind-body was felt harmful overwhelmingly, the patients’ life experiences were disrupted. The patients gradually learned to live with the chronic illness and reconstruct the meaning of the suffering encounters. The ill person who turned illness into story transformed fate info experience. Those who have been objects of others’ reports are now telling their own stories. As they do so, they define the ethics of voices in their own words, and the wounded storytellers became the wounded healers, in the narrative reconstruction modes. Finally, the implications, suggestions and limitations about the study were discussed.