| Summary: | 碩士 === 台北醫學院 === 醫學研究所 === 89 === This study is designed to investigate the physiologic, psychologic and family- social burden for caregivers of spinal cord injury patients under home care. This study
aims to examine the related factors of burden and understand the needs of caregiver. The study population are the members of Spinal Cord Injury Patient Association in Tainan City and Tainan County and Rehabilitation clinic patients in a medical center located in southern Taiwan. The valid samples are 53 through purposive sampling.
The results show: (1) For the demographic data of patients, both “sex” and “membership of Spinal Cord Patient Association” variables are significantly associated with burden of caregiver. In interview findings, male patients demand more from carers membership; marriage crisis will compared with female patients cause burden of carers; the utilization of social services and lessen the burden of carers; the severity of pressure sores puzzles caregiver. (2) In demographic data of caregivers, four variables, “sex”,“education”,“actual caring time” and “religion” are significantly associated with caregivers’ burden. In qualitatively study, the carers adjust their career and life style for patients; the carers have the recognition of sex discrepancy and paternity; few change in the role of caring patients; most members of family will act together in caring patients. (3) In the support of carers, result is the same in quantitative and qualitative study, that is, the economic demand is the greatest; the support in whole is moderate, i.e. the more support, the less burden. (4) In the quantitative study of interactive relationship before and after caring patients and the change of health and economics, only economics is significantly associated with caregiver’s burden, but, in qualitative study, most of the interactive relationship gets better and health and economic status get worse. The worrying degree of main carers for patients is unanimously the greatest in burden both from quantitative and qualitative.
KEYWORDS: spinal cord injury, caregiver, burden, demand
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