| Summary: | 碩士 === 高雄醫學院 === 護理學研究所 === 86 === Abstract
The purpose of this research was to investigate the social
support, caregiving burden and quality of life of the parents
with Duchenne muscular dystrophy children. A descriptive
correlation study was conducted. In a convenient sampling,
eighty-one participants were recruited from Tainan, Kaohsiung
and Pin-tong. Data were collected using structured
questionnaires, consisting of four instruments. Instruments
were the Social Support Scale, the Caregiver Reaction
Assessment, the Quality of Life Index, and demographic
characteristics of the participants. Descriptive statistics,
t-test, paired t-test, one-way ANOVA, nonparametric test,
Pearson correlation and multiple regression were used to
analyze data.
Results showed that: (1) there was significant difference
between fathers'' and mothers'' perception of social support and
caregiving burden, but not related to quality of life; (2)
fathers perceived moderate social support, but mothers
perceived less social support; (3) both parents perceived
moderate caregiving burden, but the mothers'' were higher than
fathers''; (4) both parents perceived moderate quality of life;
(5) there was a significant correlation among mothers'' social
support, caregiving burden and quality of life. In summary, the
more social support the mothers had, the lower the caregiving
burden they perceived, and the higher quality of life they had.
Based on the results from this study, a multi-
dimension-thinking process was recommended to nurses as follows:
When providing caregiving to the family with chronic ill-child,
nurses should consider the caregivers'' social support and
caregiving burden simultaneously; therefore, nurses could
provide a better help and service, and improve both caregivers
and care receivers'' quality of life.
Key words：
Duchenne muscular dystrophy, parents of the ill children,
social support, caregiving burden, quality of life.
|
|---|
