| Summary: | 碩士 === 高雄醫學大學 === 護理研究所 === 82 === The adequate nursing care must be based on understanding the clint. In order to provide better care for Thalassemia child, the purposes of this study were to investigate the stressors, stress of relative deprivation and coping strategies of the parents whose children were suffered from β-Thalassemia major. The method of this study were to proceed indepth interviews with 17 parents (including 6 fathers and 11 mothers) whose children were suffered from β-Thalassemia major. The process of interviews were recorded on tape and translated into 300 pages of interview recording. The interview data was analyzed by content analysis. The intra-scorer reliability was 0.96 at the interval of one week after first coding, and the inter-scorer reliability was 0.77.
These stressors susceptible to the parents were devided into two parts: diseased - related stressors consisting of disease characters (inheritance, development, hemosiderosis, death etc.), medical managements (blood transfusion, iron - chelating agent injection, bone marrow transplantation, etc), medical environments (cost, relative procedure, area etc.) and diseased child''s health condition (general condition and abrupt condition). Interpersonal - stressors were produced by diseased child, siblings, relatives, other diseased child, doctor and staff, and community. 「Stressors from diseased child」 was mentioned by all of the 17 parents, because the they all worried about what the child''s though and what the child''s thought and what the child''s felt.
Analyzed by the concept of relative deprivation, both of the major stressors would produce the stress of the parents. There are different, uncertain, inconvenient, discomfortable, unable to control, discooperative, maladusted, insecure. All of parents mentioned that the difference of the appearances and the difference of growth were be a stress to them.
Parents have used three kinds of coping strategies. First of all was to manage the stress, including defense, abreaction and relief. Secondary was to handle the stressors, and avoid to contact with sressors. Third was to adjust oneself, including to change thoughts and abilities.
It is difficult to analyze the difference between fathers and mothers and the relative factors which influence the susceptibilities of parents because of the small case number.
It has great potential to do continuing research by questionnaires based on the results of this study.
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