Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV

Bibliographic Details
Main Author: Perazzo, Joseph D.
Language:English
Published: University of Cincinnati / OhioLINK 2015
Subjects:
HIV
Online Access:http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304
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spelling ndltd-OhioLink-oai-etd.ohiolink.edu-ucin14279813042021-08-03T06:29:33Z Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV Perazzo, Joseph D. Nursing HIV Care Initiation Grounded Theory HIV Care Factors HIV Care HIV Care Theory Background: Despite tremendous advances in HIV treatment, less than 30% of the more than 1 million people living with HIV in the US are achieving optimal treatment outcomes. Researchers have recognized that there is an urgent need to understand factors and processes that influence individuals with HIV to initiate HIV care. Purpose: The specific aims of the study were to develop a theoretical framework to explain the psychosocial process of care initiation in individuals living with HIVto identify the critical junctures, defined as pivotal events reported by study participants, that influence individuals living with HIV in their decision to initiate HIV careMethods: Grounded theory was the method used to analyze in-depth interviews with individuals living with HIV. A team of IRB-approved researchers analyzed the data using three levels of coding: Open coding, selective coding, and theoretical coding. Analysis was conducted with an aim of identifying the psychosocial process of care initiation by individuals living with HIV. Results: 30 individuals living with HIV (28 men, 2 women) participated in the study. Participants shared their stories about how they went from learning that they had HIV to the point of HIV care initiation. The core category discovered in the data was concept of HIV as news. News, by definition, is impactful information that was not previously known that is delivered by one party and received by another. Participants described a process in which they progressed through five distinct stages: a) receiving the news, b) interpreting the news, c) incorporating the news, d) acting on the news, and e) moving beyond the news. Each stage was moderated by influential factors including perceived susceptibility to HIV infection, symptoms, HIV information, and feedback from others. The initial receipt of the news was typically interpreted as `bad news’. However, through reflection, interaction with others, and information seeking, participants learned that HIV was not a death sentence and that there are treatment options available to them. In effect, the participants were able to translate the news, often beginning as something bad, but changing into something good. The constructed framework is known as “Translating the News: A Grounded Theory of HIV Care Initiation”Conclusion: Individuals who are diagnosed with HIV often encounter a myriad of challenges at the point of diagnosis. Individuals are able to move through the care initiation process with fewer complications when they are provided with encouragement and information, particularly about their treatment options. The key to successful care initiation is helping individuals with HIV to realize that while the diagnosis may seem like bad news, there is also good news: HIV is not a death sentence. 2015-06-05 English text University of Cincinnati / OhioLINK http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304 http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304 unrestricted This thesis or dissertation is protected by copyright: all rights reserved. It may not be copied or redistributed beyond the terms of applicable copyright laws.
collection NDLTD
language English
sources NDLTD
topic Nursing
HIV
Care Initiation
Grounded Theory
HIV Care Factors
HIV Care
HIV Care Theory
spellingShingle Nursing
HIV
Care Initiation
Grounded Theory
HIV Care Factors
HIV Care
HIV Care Theory
Perazzo, Joseph D.
Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
author Perazzo, Joseph D.
author_facet Perazzo, Joseph D.
author_sort Perazzo, Joseph D.
title Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
title_short Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
title_full Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
title_fullStr Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
title_full_unstemmed Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV
title_sort translating the news: a grounded theory of care initiation by individuals living with hiv
publisher University of Cincinnati / OhioLINK
publishDate 2015
url http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304
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