Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions
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Case Western Reserve University School of Graduate Studies / OhioLINK
2014
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| Online Access: | http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340 |
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ndltd-OhioLink-oai-etd.ohiolink.edu-case13830603402021-08-03T06:20:07Z Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions Holt, Erika Tyne Genetics bleeding disorders hemophilia quality of life reproductive decisions perceived severity genetic counseling The purpose of this study was to investigate the influence of parental perception of severity of bleeding disorders on parents' quality of life and reproductive decisions. Parents with a child who received care at one of three Hemophilia Treatment Centers in Ohio were invited to complete a questionnaire. Results showed that the majority of participants (n=126) believed their child's bleeding disorder was mild (69.0%) in severity, and that perceived severity differed from the clinical definition of severity. Although initial analyses suggested that perceived severity impacted quality of life, it was not a significant predictor; however, it was found to impact parental burden. Moreover, perceived severity had little impact on reproductive decisions as 71.4% stated that their child's bleeding disorder did not influence reproductive plans. These results suggest that perceived severity may be important in predicting parental burden; however, a combination of factors contributes to quality of life and reproductive decisions. 2014-02-21 English text Case Western Reserve University School of Graduate Studies / OhioLINK http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340 http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340 unrestricted This thesis or dissertation is protected by copyright: all rights reserved. It may not be copied or redistributed beyond the terms of applicable copyright laws. |
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NDLTD |
| language |
English |
| sources |
NDLTD |
| topic |
Genetics bleeding disorders hemophilia quality of life reproductive decisions perceived severity genetic counseling |
| spellingShingle |
Genetics bleeding disorders hemophilia quality of life reproductive decisions perceived severity genetic counseling Holt, Erika Tyne Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| author |
Holt, Erika Tyne |
| author_facet |
Holt, Erika Tyne |
| author_sort |
Holt, Erika Tyne |
| title |
Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| title_short |
Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| title_full |
Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| title_fullStr |
Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| title_full_unstemmed |
Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions |
| title_sort |
perceptions of severity of children's bleeding disorders: impact on parental quality of life and reproductive decisions |
| publisher |
Case Western Reserve University School of Graduate Studies / OhioLINK |
| publishDate |
2014 |
| url |
http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340 |
| work_keys_str_mv |
AT holterikatyne perceptionsofseverityofchildrensbleedingdisordersimpactonparentalqualityoflifeandreproductivedecisions |
| _version_ |
1719434895764226048 |