CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN

CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN

Bibliographic Details
Main Author: Moon, Heehyul
Language:English
Published: Case Western Reserve University School of Graduate Studies / OhioLINK 2013
Subjects:
Gerontology
Health Care
Social Work
dyadic
caregiving
incongruence
early- stage dementia
quality of life
relationship strain
multilevel modeling
Online Access:http://rave.ohiolink.edu/etdc/view?acc_num=case1343412823
id ndltd-OhioLink-oai-etd.ohiolink.edu-case1343412823
record_format oai_dc
collection NDLTD
language English
sources NDLTD
topic Gerontology
Health Care
Social Work
dyadic
caregiving
incongruence
early- stage dementia
quality of life
relationship strain
multilevel modeling
spellingShingle Gerontology
Health Care
Social Work
dyadic
caregiving
incongruence
early- stage dementia
quality of life
relationship strain
multilevel modeling
Moon, Heehyul
CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
author Moon, Heehyul
author_facet Moon, Heehyul
author_sort Moon, Heehyul
title CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
title_short CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
title_full CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
title_fullStr CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
title_full_unstemmed CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN
title_sort care recipient and family caregiver perceptions of everyday care in early-stage dementia: the effect of incongruence on quality of life and the mediating effect of dyadic relationship strain
publisher Case Western Reserve University School of Graduate Studies / OhioLINK
publishDate 2013
url http://rave.ohiolink.edu/etdc/view?acc_num=case1343412823
work_keys_str_mv AT moonheehyul carerecipientandfamilycaregiverperceptionsofeverydaycareinearlystagedementiatheeffectofincongruenceonqualityoflifeandthemediatingeffectofdyadicrelationshipstrain
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spelling ndltd-OhioLink-oai-etd.ohiolink.edu-case13434128232021-08-03T05:20:49Z CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN Moon, Heehyul Gerontology Health Care Social Work dyadic caregiving incongruence early- stage dementia quality of life relationship strain multilevel modeling The objective of this study was to explore potential predictors of perceived quality of life (QOL) of care recipients (CRs) with early-stage dementia and their primary family caregivers (CGs), particularly the CRs’ and CGs’ incongruent perceptions, and the CRs’ and CGs’ perceptions of strain in their relationship. The study assessed incongruence between CG and CR perceptions about CRs’ values and preferences in regards to social relations in day-to-day care and CRs’ participation in decision-making in day-to-day care, in order to investigate the extent to which CGs understand CRs’ perceptions. Second, the study examined the mediating effect of perceived dyadic relationship strain between CGs and CRs on the association between incongruence and QOL of both CGs and CRs. Finally, this dyadic study addressed the relationships between background factors -- CGs’ perceived income adequacy, gender, and kin relationship to the CR (i.e., spouse or non spouse) -- and the stressors (i.e., incongruence on values/preferences and daily decision making), mediator (i.e., CGs’ and CRs’ perceptions of relationship strain), and outcome (i.e., CGs’ and CRs’ QOL). Little attention has been given to the study of CRs with early-stage dementia as independent informants in the caregiving process and the experience of CGs of people with dementia at the early stage. Little attention has been paid in the caregiving literature to dyadic caregiving research. In particular, caregiving research has paid little attention to the potential incongruence between CGs’ judgments about CRs’ needs and preferences for day-to-day care and CRs’ own thoughts about the caregiving process, and the effect of incongruence on CGs’ and CRs’ QOL. This study was based on secondary analysis of cross-sectional data drawn from a non-experimental interview study of 205 care dyads of CRs with early-stage dementia and their primary family CGs. Multilevel modeling was used for analyses, to take the dyadic design into account. Findings showed that CGs rated CRs’ involvement in decision making as significantly less active than CRs did, on average. Similarly, CGs reported that CRs had lower values and preferences for social relations than CRs thought, on average. There was a significant relationship between greater incongruence on values and preferences (but not incongruence on decision-making involvement) and lower QOL. When CG reported that the CR valued social relationships less than the CR himself/herself reported, CGs’ and CRs’ QOL was significantly lower compared to QOL when there was no incongruence on values and preferences. However, no mediation effect via dyadic relationship strain was found. This study provides evidence that some CGs and CRs have significantly different perceptions about CRs’ levels of decision-making involvement and CRs’ values for social relations. The study also demonstrates that the area in which one measures incongruence may influence the results. This study reveals that QOL of CGs and CRs is correlated, affirming the importance of conceptualizing caregiving from a dyadic perspective. This study recognizes that dyad–level characteristics as well as individual-level characteristics predict QOL when multilevel modeling is applied to data from CRs with early-stage dementia and family CGs. It also highlights the advantages of including absolute differences and direction of differences as alternative, but complementary, ways of investigating incongruence. Finally, this study adds to the small but growing body of research documenting the feasibility and desirability of including the perspectives of individuals with early-stage dementia. 2013-03-19 English text Case Western Reserve University School of Graduate Studies / OhioLINK http://rave.ohiolink.edu/etdc/view?acc_num=case1343412823 http://rave.ohiolink.edu/etdc/view?acc_num=case1343412823 unrestricted This thesis or dissertation is protected by copyright: all rights reserved. It may not be copied or redistributed beyond the terms of applicable copyright laws.

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