Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health

Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health

Bibliographic Details
Main Author: Kraft, Kathryn A.
Language:English
Published: Antioch University / OhioLINK 2014
Subjects:
Clinical Psychology
Congenital Adrenal Hyperplasia
CAH
Family Systems Illness model
family sculpture
narrative family intervention
chronic childhood illness
quality of life
Online Access:http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617
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spelling ndltd-OhioLink-oai-etd.ohiolink.edu-antioch14055126172021-08-03T06:26:00Z Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health Kraft, Kathryn A. Clinical Psychology Congenital Adrenal Hyperplasia CAH Family Systems Illness model family sculpture narrative family intervention chronic childhood illness quality of life In this dissertation, I discuss the medical and psychological needs of families with children with Congenital Adrenal Hyperplasia (CAH). Due to these needs, I have designed and described a program of social support and psychoeducation to be offered to parents and families. Specifically, I discuss the difficulty that parents have when finding out that their child has CAH, the emotional toll this takes on a parent, on their relationship, and on their family. Using a Family Systems Illness Model, I designed a program that takes into account family functioning, organization, structure, and communication when determining what would be most helpful for these families at different stages in their adaptation to this disease. I then lay out a clear plan of action for implementing this program in settings where parents would gather and connect such as children’s hospitals that treat their children. This program could also be used outside of a hospital setting in many different supportive environments. 2014-07-16 English text Antioch University / OhioLINK http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617 http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617 unrestricted This thesis or dissertation is protected by copyright: all rights reserved. It may not be copied or redistributed beyond the terms of applicable copyright laws.
collection NDLTD
language English
sources NDLTD
topic Clinical Psychology
Congenital Adrenal Hyperplasia
CAH
Family Systems Illness model
family sculpture
narrative family intervention
chronic childhood illness
quality of life
spellingShingle Clinical Psychology
Congenital Adrenal Hyperplasia
CAH
Family Systems Illness model
family sculpture
narrative family intervention
chronic childhood illness
quality of life
Kraft, Kathryn A.
Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
author Kraft, Kathryn A.
author_facet Kraft, Kathryn A.
author_sort Kraft, Kathryn A.
title Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
title_short Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
title_full Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
title_fullStr Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
title_full_unstemmed Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health
title_sort supporting families with congenital adrenal hyperplasia: encouraging whole family health
publisher Antioch University / OhioLINK
publishDate 2014
url http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617
work_keys_str_mv AT kraftkathryna supportingfamilieswithcongenitaladrenalhyperplasiaencouragingwholefamilyhealth
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