A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease

Bibliographic Details
Main Author:	Owoo, Francesca K.
Language:	English
Published:	University of Akron / OhioLINK 2017
Subjects:	African Americans Black Studies Counseling Education Families and Family Life Genetics Health Care Health Health Education Health Care Management Individual and Family Studies Mental Health Minority and Ethnic Groups Psychology Psychotherapy Public Health Public Policy Social Work Womens Studies sickle cell disease phenomenological primary caregivers chronic illness multigenerational transmission process Intergenerational Family Therapy healthcare disparities African American genogram
Online Access:	http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742

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spelling	ndltd-OhioLink-oai-etd.ohiolink.edu-akron1491491714617422021-08-03T07:01:21Z A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease Owoo, Francesca K. African Americans Black Studies Counseling Education Families and Family Life Genetics Health Care Health Health Education Health Care Management Individual and Family Studies Mental Health Minority and Ethnic Groups Psychology Psychotherapy Public Health Public Policy Social Work Womens Studies sickle cell disease phenomenological primary caregivers chronic illness multigenerational transmission process Intergenerational Family Therapy healthcare disparities African American genogram This qualitative phenomenological study explored the lived experiences of primary caregivers when caring for a child with sickle cell disease (SCD). Specifically, the researcher’s goal was to understand how these experiences shape and impact a primary caregiver’s experience of daily living. The researcher provided a comprehensive review of the history of SCD along with its effects on the familial unit, as well as the primary caregiver. Social inequalities and health care disparities were also discussed in relation to the role it may play in receiving adequate health care for a child with SCD. With the integration of a focused genogram, the researcher was able to evaluate the intergenerational transmission of caregiving behaviors experienced with SCD. Six primary caregivers provided personal accounts of their experiences when caring for a child with SCD in the African American community while addressing the following research questions: (1) What is the lived experience of the primary caregiver of a child with SCD? (2) What is the lived experience of primary caregivers of a child with SCD specifically regarding child’s medical services? and (3) What are the parallels in caregiving behaviors between caregivers of a child with SCD and the caregiving behaviors of past generation caregivers? Lastly, a discussion of the findings, limitations of the study, implications for family therapists and further research were addressed. 2017-07-14 English text University of Akron / OhioLINK http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742 http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742 unrestricted This thesis or dissertation is protected by copyright: all rights reserved. It may not be copied or redistributed beyond the terms of applicable copyright laws.
collection	NDLTD
language	English
sources	NDLTD
topic	African Americans Black Studies Counseling Education Families and Family Life Genetics Health Care Health Health Education Health Care Management Individual and Family Studies Mental Health Minority and Ethnic Groups Psychology Psychotherapy Public Health Public Policy Social Work Womens Studies sickle cell disease phenomenological primary caregivers chronic illness multigenerational transmission process Intergenerational Family Therapy healthcare disparities African American genogram
spellingShingle	African Americans Black Studies Counseling Education Families and Family Life Genetics Health Care Health Health Education Health Care Management Individual and Family Studies Mental Health Minority and Ethnic Groups Psychology Psychotherapy Public Health Public Policy Social Work Womens Studies sickle cell disease phenomenological primary caregivers chronic illness multigenerational transmission process Intergenerational Family Therapy healthcare disparities African American genogram Owoo, Francesca K. A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
author	Owoo, Francesca K.
author_facet	Owoo, Francesca K.
author_sort	Owoo, Francesca K.
title	A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
title_short	A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
title_full	A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
title_fullStr	A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
title_full_unstemmed	A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease
title_sort	phenomenological study of the lived experiences of caregivers of children with sickle cell disease
publisher	University of Akron / OhioLINK
publishDate	2017
url	http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742
work_keys_str_mv	AT owoofrancescak aphenomenologicalstudyofthelivedexperiencesofcaregiversofchildrenwithsicklecelldisease AT owoofrancescak phenomenologicalstudyofthelivedexperiencesofcaregiversofchildrenwithsicklecelldisease
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A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease

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