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Previous issue date: 2016-12-22 === A Hansen?ase ? apresentada como uma das doen?as mais antigas da hist?ria da humanidade, marcada pelo estigma, preconceito e exclus?o social, causando no passado o isolamento compuls?rio de seus portadores e afastamento total ou parcial do v?nculo familiar, ficando os filhos privados desse conv?vio, confinados e criados em prevent?rios/educand?rios. O objetivo geral foi avaliar a autoestima e a qualidade de vida dos filhos separados pela hansen?ase no Estado do Rio Grande do Norte. Trata-se de um estudo descritivo, com abordagem quantitativa realizado com 60 sujeitos, localizados a partir do cadastro do Movimento de Reintegra??o das Pessoas Atingidas pela Hansen?ase (MORHAN) Potiguar. Utilizou-se question?rio s?cio demogr?fico, Escala de autoestima de Rosenberg e Medical Outcomes Study 36 ? item Short Form (SF-36). O projeto de pesquisa foi aprovado sob o n?mero 1.047.792 pelo Comit? de ?tica em Pesquisa/UFRN. Os dados obtidos foram analisados no programa SPSS 20.0, com avalia??o consist?ncia interna das escalas e teste de normalidade. Realizaram-se an?lises descritiva e inferencial nos cruzamentos das vari?veis com testes n?o-param?tricos, Qui-quadrado, U de Mann-Whitney, Friedman e correla??o de Spearman e adotado p<0,05. Os resultados foram organizados em dois artigos. No primeiro, destacam-se o perfil sociodemogr?fico por sexo feminino, faixa et?ria de adultos e idosos, ensino fundamental, casados, renda entre 1 a 3 sal?rios m?nimos, casa pr?pria, dona de casa e aposentados. A qualidade de vida foi considerada boa, significando melhor nos dom?nios dos aspectos sociais (71,3), capacidade funcional (69,3), sa?de mental (68,1), vitalidade (58,3), estado geral de sa?de (57,1) e pior na limita??o por aspectos emocionais (49,4), com diferen?a significativa (p= 0,002), entre os dom?nios avaliados. Os pesquisados apresentaram a qualidade de vida est?vel (35,0%) quando comparado com um ano atr?s. No segundo artigo, destacam-se boa qualidade de vida no sexo masculino com diferen?a entre os dom?nios (p-valor < 0,001) e melhores escores nos aspectos sociais, capacidade funcional e sa?de mental e pior na limita??o por aspectos f?sicos. No feminino, boa qualidade de vida (p-valor = 0,063) e com melhores escores nos dom?nios vitalidade, estado geral de sa?de, dor e limita??o por aspectos f?sicos e pior escore na limita??o por aspecto emocional. Apenas o dom?nio no estado geral de sa?de entre os sexos apresentou diferen?a, sendo melhor nas mulheres (p-valor= 0,015). Autoestima foi boa no geral, sendo um pouco melhor no masculino. Verificou-se correla??es positivas e significantes entre os dom?nios da qualidade de vida e autoestima, sendo moderada nos aspectos sociais, capacidade funcional, sa?de mental, vitalidade, limita??o por aspectos f?sicos e emocionais fracas no estado geral de sa?de e dor, denotando-se que quanto melhor a autoestima melhor a qualidade de vida. Conclus?o: Verificou-se a exist?ncia de correla??es positivas e significantes (p<0,05) entre os dom?nios da qualidade de vida e autoestima, refuta-se a hip?tese nula, se aceita a hip?tese alternativa, h? correla??o entre autoestima e a qualidade de vida dos filhos separados pela hansen?ase no Estado Rio Grande do Norte. === Leprosy is one of the oldest diseases in the history of mankind. It is profoundly marked by stigma, prejudice and social exclusion, causing compulsory isolation of its bearers and total or partial withdrawal from family ties. Children were confined and raised in preventorios / education centers. The general objective was to evaluate the self-esteem and quality of life of children separated by leprosy in Rio Grande do Norte. This is a descriptive study with a quantitative approach carried out with 60 subjects, located from the register of the Movement of Reintegration of People Affected by Leprosy (MORHAN) Potiguar. A socio-demographic questionnaire, Rosenberg Self-Esteem Scale and the short-form health survey questionnaire (SF-36) were used. The research project was approved under number 1,047,792 by the Institutional Review Board/UFRN. Data was analyzed in SPSS 20.0 program with internal evaluation of the scales and normality test. Descriptive and inferential analyzes were performed with correlation of variables on non-parametric tests, Chi-square, Mann-Whitney U, Friedman and Spearman. Statistical significance was considering at p <0.05. Results are organized in two manuscripts. The first highlights the socio-demographic profile showing predominance of female sex, age group of adults and elderly, elementary school, married, income between 1 and 3 minimum wages, home, housewife and retirees. The quality of life was good. While it was better in social aspects (71.3), functional capacity (69.3), mental health (68.1), vitality (58.3), general health status (57,1), it was worst in emotional aspects (49.4) with significant difference (p = 0.002) among the evaluated domains. The participants presented stable quality of life (35.0%) when compared to a year ago. The second manuscript indicates a good quality of life in males with difference between domains (p-value <0.001) with better scores on social aspects, functional capacity, and mental health, but worse scores on physical aspects limitation. In females, good quality of life (p-value = 0.063) with better scores in domains of vitality, general health, pain and limitation by physical aspects, but worse scores in the limitation by emotional aspect. Only the general state of health domain presented differencebetween the sexes, being better in the women (p-value = 0,015). Self-esteem was good overall, being slightly better in male. There were positive and significant correlations between the domains of quality of life and self-esteem. Moderate correlations in social aspects, functional capacity, mental health, vitality, limitation by physical and emotional aspects. Poor correlations of poor general health and pain, showing better self-esteem relates to better quality of life. Conclusion: There were positive and significant correlations between the domains of quality of life and self-esteem (p <0.05). The null hypothesis was refuted, accepting the alternative hypothesis which proposes correlation between self-esteem and quality of life of children separated by leprosy in Rio Grande do Norte.
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