| Summary: | Made available in DSpace on 2014-12-17T13:54:48Z (GMT). No. of bitstreams: 1
JociaraAN_DISSERT.pdf: 1895191 bytes, checksum: dbcf62f6afa82ae98eef54e8d4e6cf1a (MD5)
Previous issue date: 2011-06-27 === Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior === This paper discusses the experiences related to the treatment of children?s cancer
which had children, their mothers and families as their main characters. They were mainly
originated from areas in the countryside and urban poor areas in the State of Rio Grande do
Norte. The non-governmental organization Grupo de Apoio ? Crian?a com C?ncer (GACC)
was the privileged ethnographic location. In this setting, the mother, which was called
acompanhante (companion), and the children, defined as pacientes (patients), were often
sheltered in reason of therapeutic practices and the treatment undertaken by children in a
nearby hospital. This study aims to focus on the therapeutic itinerary, beyond the children?s
suffering, dealing with the family as a whole, since the moral values from these popular
families imply the complete involvement of the family in relation to the illness and its
treatment. Therefore, it is experienced as a family problem. We also intend to understand the
construction of meanings to the illness, dealing with the ideological continuity in the
relationships between the families and the GACC. These meanings were built in the
intersection of these two spheres, which refer particularly to medical, religious and emotional
explanations. Ethnographic methods were applied in this research at the entity and another
social contexts, such as the family households. I also tried to retrieve the process of treatment
outside the GACC, visiting the family context, when doing dense interviews or just having
conversations with informants. It was found that the GACC, as a non-governmental
organization, generates a negotiation of identities, which develops, then, through the family as
a whole, but also through the child and especially the mother, affecting, in some way, their
internal organization. Furthermore, the meanings of the experience of illness appeared to be
shaped by the family sphere as well as by the logic of public health structures === Este trabalho aborda experi?ncias ligadas ao tratamento do c?ncer infantil vividas por
crian?as, m?es e fam?lias das classes populares urbanas e do interior do Rio Grande do Norte,
tendo como loca??o etnogr?fica o Grupo de Apoio ? Crian?a com C?ncer (GACC) do RN. No
GACC, tanto a m?e, definida como acompanhante, como a crian?a, classificada como
paciente, ficam abrigadas mais comumente em raz?o das pr?ticas terap?uticas e de tratamento
pelas quais passam as crian?as. O objetivo desse estudo ? focar o itiner?rio terap?utico, para
al?m da crian?a que sofre a enfermidade, na fam?lia como um todo, pois o universo moral do
tipo de fam?lia em quest?o implica o envolvimento de todo o n?cleo parental no tratamento da
mol?stia da crian?a, que ?, por isso, vivenciada como uma quest?o familiar. Pretendemos
tamb?m entender a constru??o de sentidos para a doen?a, tratando das rela??es de
continuidade ideol?gica entre as fam?lias e o GACC, pois eles constroem-se no
entrecruzamento de ambas as esferas, que recorrem, cada uma de modo particular, ?s
explica??es m?dicas, religiosas e emocionais. Foi aplicado o m?todo etnogr?fico na pesquisa
feita na entidade e em outros contextos, tais como as resid?ncias familiares. Atrav?s de
entrevistas densas e conversas com informantes, tamb?m tentamos resgatar o processo do
tratamento fora do GACC, alcan?ando o contexto familiar. Constatou-se que a entidade gera
uma negocia??o de identidades, que perpassa, ent?o, a fam?lia como um todo atrav?s da
crian?a e, sobretudo, da m?e, afetando, de algum modo, a sua organiza??o interna. Al?m
disso, os sentidos para a experi?ncia da enfermidade apareceram moldados tanto pela esfera
familiar como pela l?gica das estruturas p?blicas de sa?de
|
|---|
