Promoting Resiliency in Families of Individuals Diagnosed with an Autism Spectrum Disorder: The Relationship between Parental Beliefs and Family Adaptation

• Main Author: Warter, Elizabeth Hill
• Format: Others
• Language: English
• Published: Boston College 2009
• Subjects: Adaptation; Autism; Family; Parental Beliefs; Resilience
• Online Access: http://hdl.handle.net/2345/671

Thesis advisor: Mary E. Walsh === Comprehensive and collaborative intervention practices with individuals diagnosed with an autism spectrum disorder (ASD) recognize the essential role of the family in effective, long-term treatment of ASDs (e.g., National Research Council, 2001). While some research has focused on the experiences of families of individuals diagnosed with an ASD, there exists a need to better understand what factors detract from or facilitate the family's ability to adapt to their circumstances. Guided by the FAAR model (e.g., Patterson, 1989, 2005) and the Family Systems-Illness Model (e.g., Rolland, 1994, 2003), this current study examined the relationship between two demands or risk factors (i.e., the perceived severity of a child's ASD and the uncertainty related to a child's ASD), three capabilities or protective factors (i.e., optimism, mastery beliefs, and control beliefs), and the family's adaptation to their family member's ASD (i.e., family quality of life). Parents (N=207) of children diagnosed with Autism, PDD-NOS, or Asperger's Syndrome completed a self-report questionnaire assessing perceived ASD severity, the uncertainty regarding their child's ASD, the participant's optimism, mastery, and control beliefs, and the family's quality of life. Results demonstrated that the perceived severity of the child's ASD, the uncertainty related to the child's ASD, dispositional optimism, sense of coherence, and professional-related health locus of control are factors that significantly influence the family's overall quality of life. In addition, dispositional optimism and sense of coherence were found to mediate the relationship between the identified demand factors and the family's quality of life. Results suggest that perceived severity and uncertainty regarding a family member's ASD are demands that have important implications for the family. Additionally, results suggest that optimism and mastery beliefs can play a positive, complex role in the family's adaptation to a family member's ASD. Finally, the results of this study suggest that control beliefs may act in complex and different ways than expected. Theoretical considerations and implications for practice and future research are discussed. === Thesis (PhD) — Boston College, 2009. === Submitted to: Boston College. Lynch School of Education. === Discipline: Counseling, Developmental, and Educational Psychology.