Dementias Platform UK (DPUK) Data Portal - supporting multi-modal data analysis, data linkage and real-world outcomes

• Main Authors: Christopher Orton, John Gallacher, Ronan A Lyons, David Ford, Simon Thompson, Sarah Bauermeister
• Format: Article
• Language: English
• Published: Swansea University 2018-06-01
• Series: International Journal of Population Data Science
• Online Access: https://ijpds.org/article/view/538

DPUK relaunched the Data Portal in November 2017 to present openly available information on the data availability and technical capability of the Data Portal, which supports multi-modal research studies with various objectives from disease model validation to observation investigation. DPUK not only brings clinical data together from cohorts, but is now supporting multi-modal studies in genetics and imaging, as well as linkage opportunities to routine data using world-leading technical solutions to data sharing. The capacity, adaptability and sophistication of the UK Secure eResearch Platform which the Portal is housed on, allows for unprecedented levels of centralised access to rich cohort and routine data, which is consequentially leading to international collaboration and development ambition within epidemiology, bioinformatics, research methodology and technical research solutions. As of March 2018, DPUK is supporting 50 cohorts, 41 from the UK and 9 from across the rest of the world, alongside furthering links and access to routine data held in the UK and across the world. 20 research studies are underway, and the DPUK mission to enhance data science within dementia research is leading the conversation for developing a community of excellence in this field and across other research genres.