Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish

<p>Abstract</p> <p>Background</p> <p>The objective of this study was to develop simultaneously a new questionnaire, the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ), in American English and American Spanish in order to elucidate the impact of caring for a child...

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Main Authors: Keininger Dorothy L, Kim Jennifer, Becker Sara, Crawley Joseph A
Format: Article
Language:English
Published: BMC 2005-01-01
Series:Health and Quality of Life Outcomes
Online Access:http://www.hqlo.com/content/3/1/5
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spelling doaj-f284e19962c5406e8158a60c750de8a92020-11-24T23:58:46ZengBMCHealth and Quality of Life Outcomes1477-75252005-01-0131510.1186/1477-7525-3-5Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American SpanishKeininger Dorothy LKim JenniferBecker SaraCrawley Joseph A<p>Abstract</p> <p>Background</p> <p>The objective of this study was to develop simultaneously a new questionnaire, the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ), in American English and American Spanish in order to elucidate the impact of caring for a child with GERD.</p> <p>Methods</p> <p>Two focus group discussions were conducted in American English and American Spanish to develop a relevant conceptual model. Focus group participants were the primary caregivers of children with GERD (newborn through 12 years of age). Participant responses were qualitatively analyzed to identify potential differences in caregiver perspectives by the caregiver's language, socio-economic status and demographic profile as well as the child's age and disease severity level. Items in the PGCIQ were generated simultaneously in English and Spanish by reviewing results of qualitative analysis from focus groups in each language. The PGCIQ was finalized in both languages after testing content validity and conducting an in-depth translatability assessment.</p> <p>Results</p> <p>Analysis of focus group comments resulted in the development of a first draft questionnaire consisting of 58 items in 10 domains. Content validity testing and an in-depth translatability assessment resulted in wording modification of 37 items, deletion of 14 items and the addition of a domain with five items. Feedback from the content validity testing interviews indicated that the instrument is conceptually relevant in both American English and American Spanish, clear, comprehensive and easy to complete within 10 minutes. The final version of the PGCIQ contains 49 items assessing ten domains. An optional module with nine items is available for investigative research purposes and for use only at baseline.</p> <p>Conclusion</p> <p>The PGCIQ was developed using simultaneous item generation, a process that allows for consideration of concept relevance in all stages of development and in all languages being developed. The PGCIQ is the first questionnaire to document the multidimensional impact of caring for an infant or young child with GERD. Linguistic adaptation of the PGCIQ in multiple languages is ongoing. A validation study of the PGCIQ is needed to examine its psychometric properties, further refine the items and develop an appropriate scoring model.</p> http://www.hqlo.com/content/3/1/5
collection DOAJ
language English
format Article
sources DOAJ
author Keininger Dorothy L
Kim Jennifer
Becker Sara
Crawley Joseph A
spellingShingle Keininger Dorothy L
Kim Jennifer
Becker Sara
Crawley Joseph A
Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
Health and Quality of Life Outcomes
author_facet Keininger Dorothy L
Kim Jennifer
Becker Sara
Crawley Joseph A
author_sort Keininger Dorothy L
title Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
title_short Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
title_full Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
title_fullStr Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
title_full_unstemmed Simultaneous development of the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ) in American English and American Spanish
title_sort simultaneous development of the pediatric gerd caregiver impact questionnaire (pgciq) in american english and american spanish
publisher BMC
series Health and Quality of Life Outcomes
issn 1477-7525
publishDate 2005-01-01
description <p>Abstract</p> <p>Background</p> <p>The objective of this study was to develop simultaneously a new questionnaire, the Pediatric GERD Caregiver Impact Questionnaire (PGCIQ), in American English and American Spanish in order to elucidate the impact of caring for a child with GERD.</p> <p>Methods</p> <p>Two focus group discussions were conducted in American English and American Spanish to develop a relevant conceptual model. Focus group participants were the primary caregivers of children with GERD (newborn through 12 years of age). Participant responses were qualitatively analyzed to identify potential differences in caregiver perspectives by the caregiver's language, socio-economic status and demographic profile as well as the child's age and disease severity level. Items in the PGCIQ were generated simultaneously in English and Spanish by reviewing results of qualitative analysis from focus groups in each language. The PGCIQ was finalized in both languages after testing content validity and conducting an in-depth translatability assessment.</p> <p>Results</p> <p>Analysis of focus group comments resulted in the development of a first draft questionnaire consisting of 58 items in 10 domains. Content validity testing and an in-depth translatability assessment resulted in wording modification of 37 items, deletion of 14 items and the addition of a domain with five items. Feedback from the content validity testing interviews indicated that the instrument is conceptually relevant in both American English and American Spanish, clear, comprehensive and easy to complete within 10 minutes. The final version of the PGCIQ contains 49 items assessing ten domains. An optional module with nine items is available for investigative research purposes and for use only at baseline.</p> <p>Conclusion</p> <p>The PGCIQ was developed using simultaneous item generation, a process that allows for consideration of concept relevance in all stages of development and in all languages being developed. The PGCIQ is the first questionnaire to document the multidimensional impact of caring for an infant or young child with GERD. Linguistic adaptation of the PGCIQ in multiple languages is ongoing. A validation study of the PGCIQ is needed to examine its psychometric properties, further refine the items and develop an appropriate scoring model.</p>
url http://www.hqlo.com/content/3/1/5
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