Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study usi...

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Bibliographic Details
Main Authors: Oliver Mweemba, John Musuku, Bongani M. Mayosi, Michael Parker, Rwamahe Rutakumwa, Janet Seeley, Paulina Tindana, Jantina De Vries
Format: Article
Language:English
Published: Taylor & Francis Group 2020-01-01
Series:Global Bioethics
Subjects:
h3africa
broad consent
genomics
bio-banking
zambia
Online Access:http://dx.doi.org/10.1080/11287462.2019.1592868

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