Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy

Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy

Abstract Background Compliance, palatability, gastrointestinal (GI) symptom, and treatment satisfaction patient- and observer-reported outcome (PRO, ObsRO) measures were developed/modified for patients with transfusion-dependent anemias or myelodysplastic syndrome (MDS) requiring iron chelation ther...

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Bibliographic Details
Main Authors: Erica G. Horodniceanu, Vasudha Bal, Harman Dhatt, John A. Carter, Vicky Huang, Kathryn Lasch
Format: Article
Language:English
Published: BMC 2017-06-01
Series:Health and Quality of Life Outcomes
Subjects:
Patient-reported outcomes
Observer-reported outcomes
Qualitative research
Iron chelation therapy
Cognitive debriefing
Instrument
Online Access:http://link.springer.com/article/10.1186/s12955-017-0702-0

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