Narrative, Objects, and the Construction of the Self

Dementia and Alzheimer’s disease know no boundaries. While this much is known, there is little beyond the medicalization of onset to provide insights into individuals instantly marginalized by a diagnosis with no future. The role of objects and storytelling in supporting the well-being and engageme...

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Main Author: Lynne C Howarth
Format: Article
Language:English
Published: University of Hawai'i Library & Information Science Program 2019-11-01
Series:The International Journal of Information, Diversity, & Inclusion
Subjects:
Online Access:https://jps.library.utoronto.ca/index.php/ijidi/article/view/32841
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spelling doaj-d2a90044a988430b8ff09613200e24712021-05-02T21:50:41ZengUniversity of Hawai'i Library & Information Science ProgramThe International Journal of Information, Diversity, & Inclusion2574-34302019-11-014110.33137/ijidi.v4i1.32841Narrative, Objects, and the Construction of the SelfLynne C Howarth0Faculty of Information, University of Toronto Dementia and Alzheimer’s disease know no boundaries. While this much is known, there is little beyond the medicalization of onset to provide insights into individuals instantly marginalized by a diagnosis with no future. The role of objects and storytelling in supporting the well-being and engagement of those dealing with Alzheimer’s disease and related dementias (ADRD) has recently become an accepted strategy in non-medical interventions for the disease. Many care facilities, day programs, and associations providing support for ADRD offer reminiscence and story sharing as regular activities. Building on research undertaken to explore how objects can be used as memory cues to evoke a memory of a person, place, event, or artefact in an individual’s personal narrative, this paper makes a case for mobilizing object memoir to empower the voices of the cognitively disabled. It argues for respecting the individual storyteller, not for the person he or she once was or may become in the future, but as someone with a unique identity and an inherent value as she or he is in the present. Object memoir as a readily invoked activity not only adds to the self-worth and social efficacy of an individual with ADRD, but also fosters meaningful connection with family, friends, and other caregivers who may be experiencing the loss of their own stories as memories of a shared past fade or disappear. https://jps.library.utoronto.ca/index.php/ijidi/article/view/32841Alzheimer’s diseasecommon reminiscencedisability life writingobject memoirstorytelling
collection DOAJ
language English
format Article
sources DOAJ
author Lynne C Howarth
spellingShingle Lynne C Howarth
Narrative, Objects, and the Construction of the Self
The International Journal of Information, Diversity, & Inclusion
Alzheimer’s disease
common reminiscence
disability life writing
object memoir
storytelling
author_facet Lynne C Howarth
author_sort Lynne C Howarth
title Narrative, Objects, and the Construction of the Self
title_short Narrative, Objects, and the Construction of the Self
title_full Narrative, Objects, and the Construction of the Self
title_fullStr Narrative, Objects, and the Construction of the Self
title_full_unstemmed Narrative, Objects, and the Construction of the Self
title_sort narrative, objects, and the construction of the self
publisher University of Hawai'i Library & Information Science Program
series The International Journal of Information, Diversity, & Inclusion
issn 2574-3430
publishDate 2019-11-01
description Dementia and Alzheimer’s disease know no boundaries. While this much is known, there is little beyond the medicalization of onset to provide insights into individuals instantly marginalized by a diagnosis with no future. The role of objects and storytelling in supporting the well-being and engagement of those dealing with Alzheimer’s disease and related dementias (ADRD) has recently become an accepted strategy in non-medical interventions for the disease. Many care facilities, day programs, and associations providing support for ADRD offer reminiscence and story sharing as regular activities. Building on research undertaken to explore how objects can be used as memory cues to evoke a memory of a person, place, event, or artefact in an individual’s personal narrative, this paper makes a case for mobilizing object memoir to empower the voices of the cognitively disabled. It argues for respecting the individual storyteller, not for the person he or she once was or may become in the future, but as someone with a unique identity and an inherent value as she or he is in the present. Object memoir as a readily invoked activity not only adds to the self-worth and social efficacy of an individual with ADRD, but also fosters meaningful connection with family, friends, and other caregivers who may be experiencing the loss of their own stories as memories of a shared past fade or disappear.
topic Alzheimer’s disease
common reminiscence
disability life writing
object memoir
storytelling
url https://jps.library.utoronto.ca/index.php/ijidi/article/view/32841
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