Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study
BackgroundDiagnostic delay in rare disease (RD) is common, occasionally lasting up to more than 20 years. In attempting to reduce it, diagnostic support tools have been studied extensively. However, social platforms have not yet been used for systematic diagnostic support. Th...
Main Authors: | Kühnle, Lara, Mücke, Urs, Lechner, Werner M, Klawonn, Frank, Grigull, Lorenz |
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Format: | Article |
Language: | English |
Published: |
JMIR Publications
2020-09-01
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Series: | Journal of Medical Internet Research |
Online Access: | http://www.jmir.org/2020/9/e21849/ |
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