Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

BackgroundDiagnostic delay in rare disease (RD) is common, occasionally lasting up to more than 20 years. In attempting to reduce it, diagnostic support tools have been studied extensively. However, social platforms have not yet been used for systematic diagnostic support. Th...

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Bibliographic Details
Main Authors: Kühnle, Lara, Mücke, Urs, Lechner, Werner M, Klawonn, Frank, Grigull, Lorenz
Format: Article
Language:English
Published: JMIR Publications 2020-09-01
Series:Journal of Medical Internet Research
Online Access:http://www.jmir.org/2020/9/e21849/