Patients and Partners in Research: Patient and Caregiver Perceptions of Research Engagement and the Role of Their Psychosocial States in Participation

Multiple sclerosis (MS) is one of the most common, nontraumatic, disabling diseases diagnosed in adults. Self-empowered patients and families are valued members of the MS research team. The objective of this study was to explore patient and family perceptions of the influence of psychosocial state o...

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Bibliographic Details
Main Authors: Chamika Hawkins-Taylor MHA, PhD, Surachat Ngorsuraches PhD, Natasha Frost MS, MD, Starr K Sage PhD, MPH, Holly Anderson BS
Format: Article
Language:English
Published: SAGE Publishing 2021-06-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735211018084