Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons

Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons

Recent privacy scandals such as Cambridge Analytica and the Nightingale Project show that data sharing must be carefully managed and regulated to prevent data misuse. Data protection law, legal frameworks, and technological solutions tend to focus on controller responsibilities as opposed to prote...

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Bibliographic Details
Main Authors: Janis Wong, Tristan Henderson
Format: Article
Language:English
Published: University of Edinburgh 2020-08-01
Series:International Journal of Digital Curation
Online Access:http://www.ijdc.net/article/view/714
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spelling doaj-c79921ec90f947d18d6ef99d73ffe4242020-11-25T03:15:45ZengUniversity of EdinburghInternational Journal of Digital Curation1746-82562020-08-0115110.2218/ijdc.v15i1.714Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data CommonsJanis Wong0Tristan Henderson1University of St AndrewsUniversity of St Andrews Recent privacy scandals such as Cambridge Analytica and the Nightingale Project show that data sharing must be carefully managed and regulated to prevent data misuse. Data protection law, legal frameworks, and technological solutions tend to focus on controller responsibilities as opposed to protecting data subjects from the beginning of the data collection process. Using a case study of how data subjects can be better protected during data curation, we propose that a co-created data commons can protect individual autonomy over personal data through collective curation and rebalance power between data subjects and controllers.   http://www.ijdc.net/article/view/714
collection DOAJ
language English
format Article
sources DOAJ
author Janis Wong
Tristan Henderson
spellingShingle Janis Wong
Tristan Henderson
Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
International Journal of Digital Curation
author_facet Janis Wong
Tristan Henderson
author_sort Janis Wong
title Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
title_short Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
title_full Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
title_fullStr Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
title_full_unstemmed Co-Creating Autonomy: Group Data Protection and Individual Self-determination within a Data Commons
title_sort co-creating autonomy: group data protection and individual self-determination within a data commons
publisher University of Edinburgh
series International Journal of Digital Curation
issn 1746-8256
publishDate 2020-08-01
description Recent privacy scandals such as Cambridge Analytica and the Nightingale Project show that data sharing must be carefully managed and regulated to prevent data misuse. Data protection law, legal frameworks, and technological solutions tend to focus on controller responsibilities as opposed to protecting data subjects from the beginning of the data collection process. Using a case study of how data subjects can be better protected during data curation, we propose that a co-created data commons can protect individual autonomy over personal data through collective curation and rebalance power between data subjects and controllers.  
url http://www.ijdc.net/article/view/714
work_keys_str_mv AT janiswong cocreatingautonomygroupdataprotectionandindividualselfdeterminationwithinadatacommons
AT tristanhenderson cocreatingautonomygroupdataprotectionandindividualselfdeterminationwithinadatacommons
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