Survival of patients with rare diseases: a population-based study in Tuscany (Italy)

Survival of patients with rare diseases: a population-based study in Tuscany (Italy)

Abstract Background Rare diseases (RDs) encompass a heterogeneous group of life-threatening or chronically debilitating conditions that individually affect a small number of subjects but overall represent a major public health issue globally. There are still limited data on RD burden due to the pauc...

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Bibliographic Details
Main Authors: Francesca Gorini, Alessio Coi, Lorena Mezzasalma, Silvia Baldacci, Anna Pierini, Michele Santoro
Format: Article
Language:English
Published: BMC 2021-06-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare disease
Survival
Mortality risk
Disease registry
Online Access:https://doi.org/10.1186/s13023-021-01907-0

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