Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda [version 2; peer review: 2 approved]
Background: In the last decade, Low- and Middle-Income Countries (LMICs) have set up Biobanks to collect human biological materials and associated data for genomic research and public health purposes. Biobanking gives rise to ethical challenges, such as informed consent, benefit sharing, confidentia...
Main Authors: | Hellen Nansumba, Isaac Ssewanyana, Micheal Tai, Douglas Wassenaar |
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Format: | Article |
Language: | English |
Published: |
Wellcome
2020-09-01
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Series: | Wellcome Open Research |
Online Access: | https://wellcomeopenresearch.org/articles/4-171/v2 |
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