The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives

In recent years, public awareness campaigns have targeted knowledge gaps and inequities in care while focusing on the unique female experience and heightened cardiovascular disease (CVD) risk profile. Recognizing and understanding the sex and gender constructs, barriers, facilitators, and factors th...

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Main Authors: Tracey J.F. Colella, RN, PhD, Marsha Hardy, MSW, RSW, Donna Hart, Jennifer A.D. Price, PhD, RN, CCN(C), Hope Sarfi, Kerri-Anne Mullen, PhD, MSc, Sharon Mulvagh, MD, FRCPC, FACC, FASE, FAHA, Colleen M. Norris, PhD, GNP, MSc, BScN, FAHA, FCAHS
Format: Article
Language:English
Published: Elsevier 2021-03-01
Series:CJC Open
Online Access:http://www.sciencedirect.com/science/article/pii/S2589790X20302092
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spelling doaj-c26ec48c89f7446b9156b141b11cc8f12021-03-13T04:25:25ZengElsevierCJC Open2589-790X2021-03-0133229235The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient PerspectivesTracey J.F. Colella, RN, PhD0Marsha Hardy, MSW, RSW1Donna Hart2Jennifer A.D. Price, PhD, RN, CCN(C)3Hope Sarfi4Kerri-Anne Mullen, PhD, MSc5Sharon Mulvagh, MD, FRCPC, FACC, FASE, FAHA6Colleen M. Norris, PhD, GNP, MSc, BScN, FAHA, FCAHS7Toronto Rehab Cardiovascular Prevention and Rehabilitation Program, University Health Network, Toronto, Ontario, CanadaCanadian Women’s Heart Health Alliance, Ottawa, Ontario, CanadaCanadian Women’s Heart Health Alliance, Ottawa, Ontario, CanadaWomen’s College Research Institute, Women's College Hospital, Toronto, Ontario, CanadaCanadian Women’s Heart Health Alliance, Ottawa, Ontario, CanadaDivision of Cardiac Prevention and Rehabilitation, University of Ottawa Heart Institute, Ottawa, Ontario, CanadaDivision of Cardiology, Dalhousie University, Halifax, Nova Scotia, Canada; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, Minnesota, United StatesFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada; Cardiovascular Health and Stroke Strategic Clinical Network, Alberta Health Services, Edmonton, Alberta, Canada; Corresponding author: Dr Colleen Norris, Professor, Faculty of Nursing, University of Alberta, 3rd Floor, ECHA, Edmonton, Alberta, T6G 1C9, Canada.In recent years, public awareness campaigns have targeted knowledge gaps and inequities in care while focusing on the unique female experience and heightened cardiovascular disease (CVD) risk profile. Recognizing and understanding the sex and gender constructs, barriers, facilitators, and factors that affect access, treatment, and recovery after an acute cardiac event from the unique patient perspective is a key step in transforming clinical practice and care patterns. The aim of this atlas chapter is to provide a knowledge review and to identify gaps regarding the experience of living with CVD from the perspective of the female survivor. The sections are as follows: (1) experiencing and living with CVD as a woman; (2) “stopped at the gate”: barriers to accessing acute cardiovascular care; and (3) action items to “open the gate” to women: what our patients want and need. The final section culminates with targeted recommendations stemming from recent literature and most importantly, from women with the lived experience of CVD. Résumé: Depuis quelques années, des campagnes de sensibilisation du public ciblent les lacunes dans les connaissances et les iniquités en matière de soins, notamment l’expérience unique que vivent les femmes et leur profil de risque de maladie cardiovasculaire (MCV) accru. Pour transformer la pratique clinique et les modèles de soins, il est crucial de reconnaître et de comprendre les conceptions relatives au sexe et au genre, les obstacles, les éléments facilitateurs ainsi que les facteurs qui influent sur l’accès aux soins, le traitement et le rétablissement après une manifestation cardiaque aiguë, du point de vue unique des patientes. Ce nouveau chapitre de l’atlas dresse un bilan des connaissances et cerne les lacunes quant à l’expérience des femmes qui vivent avec une MCV, du point de vue de survivantes. Les thèmes suivants y sont abordés : 1) vivre avec une MCV quand on est une femme; 2) « arrêtées à la porte » : les obstacles à l’accès aux soins cardiovasculaires aigus; et 3) les mesures à prendre pour « ouvrir la porte » aux femmes : souhaits et besoins des patientes. Dans la dernière section sont formulées des recommandations ciblées fondées sur des données publiées récemment et, ce qui est encore plus important, sur les commentaires de femmes qui vivent avec une MCV.http://www.sciencedirect.com/science/article/pii/S2589790X20302092
collection DOAJ
language English
format Article
sources DOAJ
author Tracey J.F. Colella, RN, PhD
Marsha Hardy, MSW, RSW
Donna Hart
Jennifer A.D. Price, PhD, RN, CCN(C)
Hope Sarfi
Kerri-Anne Mullen, PhD, MSc
Sharon Mulvagh, MD, FRCPC, FACC, FASE, FAHA
Colleen M. Norris, PhD, GNP, MSc, BScN, FAHA, FCAHS
spellingShingle Tracey J.F. Colella, RN, PhD
Marsha Hardy, MSW, RSW
Donna Hart
Jennifer A.D. Price, PhD, RN, CCN(C)
Hope Sarfi
Kerri-Anne Mullen, PhD, MSc
Sharon Mulvagh, MD, FRCPC, FACC, FASE, FAHA
Colleen M. Norris, PhD, GNP, MSc, BScN, FAHA, FCAHS
The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
CJC Open
author_facet Tracey J.F. Colella, RN, PhD
Marsha Hardy, MSW, RSW
Donna Hart
Jennifer A.D. Price, PhD, RN, CCN(C)
Hope Sarfi
Kerri-Anne Mullen, PhD, MSc
Sharon Mulvagh, MD, FRCPC, FACC, FASE, FAHA
Colleen M. Norris, PhD, GNP, MSc, BScN, FAHA, FCAHS
author_sort Tracey J.F. Colella, RN, PhD
title The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
title_short The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
title_full The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
title_fullStr The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
title_full_unstemmed The Canadian Women’s Heart Health Alliance Atlas on the Epidemiology, Diagnosis, and Management of Cardiovascular Disease in Women—Chapter 3: Patient Perspectives
title_sort canadian women’s heart health alliance atlas on the epidemiology, diagnosis, and management of cardiovascular disease in women—chapter 3: patient perspectives
publisher Elsevier
series CJC Open
issn 2589-790X
publishDate 2021-03-01
description In recent years, public awareness campaigns have targeted knowledge gaps and inequities in care while focusing on the unique female experience and heightened cardiovascular disease (CVD) risk profile. Recognizing and understanding the sex and gender constructs, barriers, facilitators, and factors that affect access, treatment, and recovery after an acute cardiac event from the unique patient perspective is a key step in transforming clinical practice and care patterns. The aim of this atlas chapter is to provide a knowledge review and to identify gaps regarding the experience of living with CVD from the perspective of the female survivor. The sections are as follows: (1) experiencing and living with CVD as a woman; (2) “stopped at the gate”: barriers to accessing acute cardiovascular care; and (3) action items to “open the gate” to women: what our patients want and need. The final section culminates with targeted recommendations stemming from recent literature and most importantly, from women with the lived experience of CVD. Résumé: Depuis quelques années, des campagnes de sensibilisation du public ciblent les lacunes dans les connaissances et les iniquités en matière de soins, notamment l’expérience unique que vivent les femmes et leur profil de risque de maladie cardiovasculaire (MCV) accru. Pour transformer la pratique clinique et les modèles de soins, il est crucial de reconnaître et de comprendre les conceptions relatives au sexe et au genre, les obstacles, les éléments facilitateurs ainsi que les facteurs qui influent sur l’accès aux soins, le traitement et le rétablissement après une manifestation cardiaque aiguë, du point de vue unique des patientes. Ce nouveau chapitre de l’atlas dresse un bilan des connaissances et cerne les lacunes quant à l’expérience des femmes qui vivent avec une MCV, du point de vue de survivantes. Les thèmes suivants y sont abordés : 1) vivre avec une MCV quand on est une femme; 2) « arrêtées à la porte » : les obstacles à l’accès aux soins cardiovasculaires aigus; et 3) les mesures à prendre pour « ouvrir la porte » aux femmes : souhaits et besoins des patientes. Dans la dernière section sont formulées des recommandations ciblées fondées sur des données publiées récemment et, ce qui est encore plus important, sur les commentaires de femmes qui vivent avec une MCV.
url http://www.sciencedirect.com/science/article/pii/S2589790X20302092
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