Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs

Abstract Background The World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation...

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Main Authors: Eva Yin-han Chung, Gigi Lam
Format: Article
Language:English
Published: BMC 2018-05-01
Series:Health and Quality of Life Outcomes
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12955-018-0938-3
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spelling doaj-c1d482c0137446a2b3c8caf68245d3e82020-11-25T01:49:10ZengBMCHealth and Quality of Life Outcomes1477-75252018-05-0116111210.1186/s12955-018-0938-3Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programsEva Yin-han Chung0Gigi Lam1Department of Special Education and Counseling, The Education University of Hong KongSchool of Arts and Humanities, Tung Wah CollegeAbstract Background The World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities. Methods The Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales. Results Both the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities. Conclusion The Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.http://link.springer.com/article/10.1186/s12955-018-0938-3ParticipationDisabilityStigmaCommunity-based rehabilitation
collection DOAJ
language English
format Article
sources DOAJ
author Eva Yin-han Chung
Gigi Lam
spellingShingle Eva Yin-han Chung
Gigi Lam
Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
Health and Quality of Life Outcomes
Participation
Disability
Stigma
Community-based rehabilitation
author_facet Eva Yin-han Chung
Gigi Lam
author_sort Eva Yin-han Chung
title Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_short Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_full Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_fullStr Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_full_unstemmed Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs
title_sort validation of two scales for measuring participation and perceived stigma in chinese community-based rehabilitation programs
publisher BMC
series Health and Quality of Life Outcomes
issn 1477-7525
publishDate 2018-05-01
description Abstract Background The World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities. Methods The Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales. Results Both the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities. Conclusion The Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.
topic Participation
Disability
Stigma
Community-based rehabilitation
url http://link.springer.com/article/10.1186/s12955-018-0938-3
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