Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

Abstract Background Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes. The PedsQL™ Sickle Cell Disease module, a disease specific HRQL instrument, has...

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Bibliographic Details
Main Authors: Julie A. Panepinto, J. Paul Scott, Oluwakemi Badaki-Makun, Deepika S. Darbari, Corrie E. Chumpitazi, Gladstone E. Airewele, Angela M. Ellison, Kim Smith-Whitley, Prashant Mahajan, Sharada A. Sarnaik, T Charles Casper, Larry J. Cook, Julie Leonard, Monica L. Hulbert, Elizabeth C. Powell, Robert I. Liem, Robert Hickey, Lakshmanan Krishnamurti, Cheryl A. Hillery, David C. Brousseau, for the Pediatric Emergency Care Applied Research Network (PECARN)
Format: Article
Language:English
Published: BMC 2017-06-01
Series:Health and Quality of Life Outcomes
Subjects:
Sickle cell disease
Quality of life
Acute pain crises
Longitudinal validity
Responsiveness
Online Access:http://link.springer.com/article/10.1186/s12955-017-0700-2

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