Growing older with post-polio syndrome: Social and quality-of-life implications

Growing older with post-polio syndrome: Social and quality-of-life implications

Objectives: To understand the quality-of-life implications for post-polio syndrome survivors. Methods: For this qualitative study, a focus group methodology, with a case study design, was used. The data were analyzed for themes using a social ecological conceptual framework. Results: Three focus gro...

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Main Authors: Andrea Duncan, Zinnia Batliwalla
Format: Article
Language:English
Published: SAGE Publishing 2018-08-01
Series:SAGE Open Medicine
Online Access:https://doi.org/10.1177/2050312118793563
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spelling doaj-af982f245f3b46b5bc6496ce271a4db12020-11-25T03:24:17ZengSAGE PublishingSAGE Open Medicine2050-31212018-08-01610.1177/2050312118793563Growing older with post-polio syndrome: Social and quality-of-life implicationsAndrea Duncan0Zinnia Batliwalla1Department of Occupational Science & Occupational Therapy, University of Toronto, Toronto, ON, CanadaMarch of Dimes Canada, Toronto, ON, CanadaObjectives: To understand the quality-of-life implications for post-polio syndrome survivors. Methods: For this qualitative study, a focus group methodology, with a case study design, was used. The data were analyzed for themes using a social ecological conceptual framework. Results: Three focus groups were conducted with a total of 24 participants (N = 24). Participants defined quality of life as being able to engage in meaningful activities of daily living. Participants shared experiences of adapting to declining physical health and embracing new activities of daily living. They expressed hope and shared stories that demonstrated resiliency. Conclusion: The literature states that individuals aging with post-polio syndrome express concern that health providers often know little about their disability condition. The participants in this study reflected this experience by sharing feelings of misunderstanding from the medical community and expressing a desire to have more dynamic education for health providers.https://doi.org/10.1177/2050312118793563
collection DOAJ
language English
format Article
sources DOAJ
author Andrea Duncan
Zinnia Batliwalla
spellingShingle Andrea Duncan
Zinnia Batliwalla
Growing older with post-polio syndrome: Social and quality-of-life implications
SAGE Open Medicine
author_facet Andrea Duncan
Zinnia Batliwalla
author_sort Andrea Duncan
title Growing older with post-polio syndrome: Social and quality-of-life implications
title_short Growing older with post-polio syndrome: Social and quality-of-life implications
title_full Growing older with post-polio syndrome: Social and quality-of-life implications
title_fullStr Growing older with post-polio syndrome: Social and quality-of-life implications
title_full_unstemmed Growing older with post-polio syndrome: Social and quality-of-life implications
title_sort growing older with post-polio syndrome: social and quality-of-life implications
publisher SAGE Publishing
series SAGE Open Medicine
issn 2050-3121
publishDate 2018-08-01
description Objectives: To understand the quality-of-life implications for post-polio syndrome survivors. Methods: For this qualitative study, a focus group methodology, with a case study design, was used. The data were analyzed for themes using a social ecological conceptual framework. Results: Three focus groups were conducted with a total of 24 participants (N = 24). Participants defined quality of life as being able to engage in meaningful activities of daily living. Participants shared experiences of adapting to declining physical health and embracing new activities of daily living. They expressed hope and shared stories that demonstrated resiliency. Conclusion: The literature states that individuals aging with post-polio syndrome express concern that health providers often know little about their disability condition. The participants in this study reflected this experience by sharing feelings of misunderstanding from the medical community and expressing a desire to have more dynamic education for health providers.
url https://doi.org/10.1177/2050312118793563
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