Ethical Issues in Research and Development of Epigenome-wide Technologies
To date, few scholarly discussions on ethical implications of epigenetics and epigenomics technologies have focused on the current phase of research and development, in which researchers are confronted with real and practical ethical dilemmas. In this article, a responsible research and innovation a...
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2020-04-01
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Series: | Epigenetics Insights |
Online Access: | https://doi.org/10.1177/2516865720913253 |
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doaj-af5149e447ec463ca29735a6cb69c4392020-11-25T03:55:42ZengSAGE PublishingEpigenetics Insights2516-86572020-04-011310.1177/2516865720913253Ethical Issues in Research and Development of Epigenome-wide TechnologiesEline M BunnikMarjolein TimmersIneke LLE BoltTo date, few scholarly discussions on ethical implications of epigenetics and epigenomics technologies have focused on the current phase of research and development, in which researchers are confronted with real and practical ethical dilemmas. In this article, a responsible research and innovation approach, using interviews and an expert meeting, is applied to a case of epigenomic test development for cervical cancer screening. This article provides an overview of ethical issues presently facing epigenomics researchers and test developers, and discusses 3 sets of issues in depth: (1) informed consent; (2) communication with donors and/or research participants, and (3) privacy and publication of data and research results. Although these issues are familiar to research ethics, some aspects are new and most require reinterpretation in the context of epigenomics technologies. With this article, we aim to start a discussion of the practical ethical issues rising in research and development of epigenomic technologies and to offer guidance for researchers working in the field of epigenetic and epigenomic technology.https://doi.org/10.1177/2516865720913253 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Eline M Bunnik Marjolein Timmers Ineke LLE Bolt |
spellingShingle |
Eline M Bunnik Marjolein Timmers Ineke LLE Bolt Ethical Issues in Research and Development of Epigenome-wide Technologies Epigenetics Insights |
author_facet |
Eline M Bunnik Marjolein Timmers Ineke LLE Bolt |
author_sort |
Eline M Bunnik |
title |
Ethical Issues in Research and Development of Epigenome-wide Technologies |
title_short |
Ethical Issues in Research and Development of Epigenome-wide Technologies |
title_full |
Ethical Issues in Research and Development of Epigenome-wide Technologies |
title_fullStr |
Ethical Issues in Research and Development of Epigenome-wide Technologies |
title_full_unstemmed |
Ethical Issues in Research and Development of Epigenome-wide Technologies |
title_sort |
ethical issues in research and development of epigenome-wide technologies |
publisher |
SAGE Publishing |
series |
Epigenetics Insights |
issn |
2516-8657 |
publishDate |
2020-04-01 |
description |
To date, few scholarly discussions on ethical implications of epigenetics and epigenomics technologies have focused on the current phase of research and development, in which researchers are confronted with real and practical ethical dilemmas. In this article, a responsible research and innovation approach, using interviews and an expert meeting, is applied to a case of epigenomic test development for cervical cancer screening. This article provides an overview of ethical issues presently facing epigenomics researchers and test developers, and discusses 3 sets of issues in depth: (1) informed consent; (2) communication with donors and/or research participants, and (3) privacy and publication of data and research results. Although these issues are familiar to research ethics, some aspects are new and most require reinterpretation in the context of epigenomics technologies. With this article, we aim to start a discussion of the practical ethical issues rising in research and development of epigenomic technologies and to offer guidance for researchers working in the field of epigenetic and epigenomic technology. |
url |
https://doi.org/10.1177/2516865720913253 |
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AT elinembunnik ethicalissuesinresearchanddevelopmentofepigenomewidetechnologies AT marjoleintimmers ethicalissuesinresearchanddevelopmentofepigenomewidetechnologies AT inekellebolt ethicalissuesinresearchanddevelopmentofepigenomewidetechnologies |
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