Living with Phenylketonuria: Lessons from the PKU community

Introduction: We report the practical, social and psychological issues of living with phenylketonuria (PKU) from one of the largest surveys that has been completed by both adults with PKU and parents/caregivers of children. Methods: In the UK, parents/caregivers of children and adults with PKU were...

Full description

Bibliographic Details
Main Authors: Suzanne Ford, Mike O'Driscoll, Anita MacDonald
Format: Article
Language:English
Published: Elsevier 2018-12-01
Series:Molecular Genetics and Metabolism Reports
Online Access:http://www.sciencedirect.com/science/article/pii/S2214426918300934