A review of quality of life themes in Duchenne muscular dystrophy for patients and carers

A review of quality of life themes in Duchenne muscular dystrophy for patients and carers

Abstract Duchenne Muscular Dystrophy (DMD) is a severe, life-limiting and incurable condition. However, studies estimating quality of life and those measuring actual quality of life in people living with DMD vary considerably. This discrepancy indicates potential difficulties with assessing quality...

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Bibliographic Details
Main Authors: Lesley Uttley, Jill Carlton, Helen Buckley Woods, John Brazier
Format: Article
Language:English
Published: BMC 2018-12-01
Series:Health and Quality of Life Outcomes
Subjects:
Duchenne muscular dystrophy
Literature review
Quality of life
Thematic analysis
Wider family impact
Online Access:http://link.springer.com/article/10.1186/s12955-018-1062-0

Internet

http://link.springer.com/article/10.1186/s12955-018-1062-0

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