Insights into rare diseases from social media surveys

Insights into rare diseases from social media surveys

Abstract The internet, and social media platforms, are increasingly being used by substantial sectors of the worldwide population. By engaging effectively with online and social media, scientists and clinicians can obtain unprecedented access to relatively large cohorts of individuals with rare dise...

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Bibliographic Details
Main Author: William Davies
Format: Article
Language:English
Published: BMC 2016-11-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Facebook
Response bias
Social media
Survey
Twitter
X-linked ichthyosis
Online Access:http://link.springer.com/article/10.1186/s13023-016-0532-x

Internet

http://link.springer.com/article/10.1186/s13023-016-0532-x

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