Being on the juvenile dermatomyositis rollercoaster: a qualitative study

Being on the juvenile dermatomyositis rollercoaster: a qualitative study

Abstract Background Juvenile Dermatomyositis is a rare, potentially life-threatening condition with no known cure. There is no published literature capturing how children and young people feel about their condition, from their perspective. This study was therefore unique in that it asked children an...

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Bibliographic Details
Main Authors: Polly Livermore, Suzanne Gray, Kathleen Mulligan, Jennifer N. Stinson, Lucy R. Wedderburn, Faith Gibson
Format: Article
Language:English
Published: BMC 2019-06-01
Series:Pediatric Rheumatology Online Journal
Subjects:
Juvenile dermatomyositis
Qualitative research
Phenomenology
Uncertainty
Psychosocial needs
Online Access:http://link.springer.com/article/10.1186/s12969-019-0332-7

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http://link.springer.com/article/10.1186/s12969-019-0332-7

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