Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan

<p>Abstract</p> <p>Background</p> <p>Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an abnormal form of hemoglobin. This disorder results in excessive destruction of red blood cells, and there is no effective treatment....

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Main Authors: Aziz Kashif, Sadaf Breera, Kanwal Sadia
Format: Article
Language:English
Published: BMC 2012-08-01
Series:BioPsychoSocial Medicine
Subjects:
Online Access:http://www.bpsmedicine.com/content/6/1/15
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spelling doaj-878c9a5e4a7d4101ba00c22130d468ec2020-11-25T00:03:10ZengBMCBioPsychoSocial Medicine1751-07592012-08-01611510.1186/1751-0759-6-15Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, PakistanAziz KashifSadaf BreeraKanwal Sadia<p>Abstract</p> <p>Background</p> <p>Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an abnormal form of hemoglobin. This disorder results in excessive destruction of red blood cells, and there is no effective treatment. Patients require lifelong blood transfusion, usually started within 6 to 12 months of birth of patient, which on other hand has its own complications. It is a chronic disease that manifests so early in life that it leads to psychological and social problems for parents . We focused on parents to assess the impact of their child’s disease.</p> <p>Objective</p> <p>To determine the psychosocial problems of parents of thalassemic children.</p> <p>Methods</p> <p>This cross sectional study was conducted among the parents of thalassemic children attending THALASSEMIA CENTRE, BAHAVAL VICTORIA HOSPITAL (BVH), BAHAWALPUR, PAKISTAN during the year 2011. A self designed questionnaire was used that contained questions regarding psychological and social aspects. Patient Health Questionnaire-9 (PHQ-9) was used to assess the depression of parents of thalassemic children.</p> <p>Results</p> <p>Of the 100 parents interviewed, the majority were mothers (71%) , with a mean age of 32 ± 8.07 years for both sexes. 29 percent of the parents had moderate to severe depression, 16 percent had sleep disturbances. 56 percent were downgraded by relatives. There was a significant relationship between respondent education and depression (p < 0.05).</p> <p>Conclusion</p> <p>A substantial number of parents have psychosocial problems due to the disease of their child. Parent counseling is needed on regular basis.</p> http://www.bpsmedicine.com/content/6/1/15ParentsPsychological morbidityThalassemiaSocial relationshipAdjustment disorderPakistan
collection DOAJ
language English
format Article
sources DOAJ
author Aziz Kashif
Sadaf Breera
Kanwal Sadia
spellingShingle Aziz Kashif
Sadaf Breera
Kanwal Sadia
Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
BioPsychoSocial Medicine
Parents
Psychological morbidity
Thalassemia
Social relationship
Adjustment disorder
Pakistan
author_facet Aziz Kashif
Sadaf Breera
Kanwal Sadia
author_sort Aziz Kashif
title Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
title_short Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
title_full Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
title_fullStr Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
title_full_unstemmed Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan
title_sort psychosocial problems of pakistani parents of thalassemic children: a cross sectional study done in bahawalpur, pakistan
publisher BMC
series BioPsychoSocial Medicine
issn 1751-0759
publishDate 2012-08-01
description <p>Abstract</p> <p>Background</p> <p>Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an abnormal form of hemoglobin. This disorder results in excessive destruction of red blood cells, and there is no effective treatment. Patients require lifelong blood transfusion, usually started within 6 to 12 months of birth of patient, which on other hand has its own complications. It is a chronic disease that manifests so early in life that it leads to psychological and social problems for parents . We focused on parents to assess the impact of their child’s disease.</p> <p>Objective</p> <p>To determine the psychosocial problems of parents of thalassemic children.</p> <p>Methods</p> <p>This cross sectional study was conducted among the parents of thalassemic children attending THALASSEMIA CENTRE, BAHAVAL VICTORIA HOSPITAL (BVH), BAHAWALPUR, PAKISTAN during the year 2011. A self designed questionnaire was used that contained questions regarding psychological and social aspects. Patient Health Questionnaire-9 (PHQ-9) was used to assess the depression of parents of thalassemic children.</p> <p>Results</p> <p>Of the 100 parents interviewed, the majority were mothers (71%) , with a mean age of 32 ± 8.07 years for both sexes. 29 percent of the parents had moderate to severe depression, 16 percent had sleep disturbances. 56 percent were downgraded by relatives. There was a significant relationship between respondent education and depression (p < 0.05).</p> <p>Conclusion</p> <p>A substantial number of parents have psychosocial problems due to the disease of their child. Parent counseling is needed on regular basis.</p>
topic Parents
Psychological morbidity
Thalassemia
Social relationship
Adjustment disorder
Pakistan
url http://www.bpsmedicine.com/content/6/1/15
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AT sadafbreera psychosocialproblemsofpakistaniparentsofthalassemicchildrenacrosssectionalstudydoneinbahawalpurpakistan
AT kanwalsadia psychosocialproblemsofpakistaniparentsofthalassemicchildrenacrosssectionalstudydoneinbahawalpurpakistan
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